- Home
- Share
- Forum
- Muscles / Skeleton / Joints Forum
- Living with diseases affecting muscles, joints and-or skeleton
- Shout what really gets you angry!!!!
Patients Muscles / Skeleton / Joints
Shout what really gets you angry!!!!
- 592 views
- 35 times supported
- 84 comments
All comments
Go to the last comment
Cervicaldystonia
Good advisor
Cervicaldystonia
Last activity on 13/12/2020 at 12:40
Joined in 2019
34 comments posted | 10 in the Muscles / Skeleton / Joints Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
Hello,
what really gets me angry is the feeling that people are staring at me! Leave me alone, it isn't my fault!!!
What annoys you @Izzyjamal ?
Izzyjamal
Good advisor
Izzyjamal
Last activity on 28/11/2020 at 09:22
Joined in 2015
72 comments posted | 34 in the Muscles / Skeleton / Joints Forum
1 of their responses was helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Committed
-
Explorer
See the signature
Isabel Amaro
Angus23
Good advisor
Angus23
Last activity on 20/11/2021 at 11:33
Joined in 2018
15 comments posted | 2 in the Muscles / Skeleton / Joints Forum
Rewards
-
Good Advisor
-
Contributor
-
Committed
-
Explorer
I can't stand the fact that people think I am lot older than I am due to having a chronic disease that has made me out of shape.
Cervicaldystonia
Good advisor
Cervicaldystonia
Last activity on 13/12/2020 at 12:40
Joined in 2019
34 comments posted | 10 in the Muscles / Skeleton / Joints Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
@Izzyjamal @Angus23 I agree with both of you. I have definitely aged beyond my years, both emotionally and physically.
Close all
See the responses
velocette
Good advisor
velocette
Last activity on 16/09/2024 at 19:30
Joined in 2015
12 comments posted | 6 in the Muscles / Skeleton / Joints Forum
3 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Committed
-
Explorer
-
Friend
@Cervicaldystonia Well I will contribute by saying that I am Male and 84 years old, however in the middle of July I was struck down with incredible pain around my back and legs, I was seen by a Physio at our local surgery that confirmed a problem, then I had to wait about 5 weeks to get a correct Diagnosis and it was confirmed that some back muscles had stopped functioning. I now have to wait until the end of October to begin treatment, so in the meantime I have to soldier on imitating Quasimodo and lean forward to gain some pain relief. But in reality I have to stay in the house and swallow pain killers
See the signature
Jim c
Hide the responses
Izzyjamal
Good advisor
Izzyjamal
Last activity on 28/11/2020 at 09:22
Joined in 2015
72 comments posted | 34 in the Muscles / Skeleton / Joints Forum
1 of their responses was helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Committed
-
Explorer
Good Afternoon My Lovely 😊 Friends!!!!
Do you know what really is doing my head in???? The side effects of my medication... I was 50-55Kg now I’m 100Kg!!!!
I hate myself I can’t see me on a mirror I ended up buying clothes size 32 to hide lumps and pumps!!!!
Honestly.... I look like a whale 🐳 and it hurts so much!!!!
All the medication is for my symptoms as it has no cure and it’s med for life!!!!!
But come on !!!! My breasts are like to extra size watermelons 🍉......
I hate to *€$*#%~< SMA!!!!!!
Hugs 🤗
Izzy
See the signature
Isabel Amaro
Izzyjamal
Good advisor
Izzyjamal
Last activity on 28/11/2020 at 09:22
Joined in 2015
72 comments posted | 34 in the Muscles / Skeleton / Joints Forum
1 of their responses was helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Committed
-
Explorer
Hi Sorry 😐 That’s My Frustration Speaking!!!!
See the signature
Isabel Amaro
Cervicaldystonia
Good advisor
Cervicaldystonia
Last activity on 13/12/2020 at 12:40
Joined in 2019
34 comments posted | 10 in the Muscles / Skeleton / Joints Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
@Izzyjamal Good afternoon to you too :)
Sometimes with the medication it can be a lot of water weight or do you find that your appetite has increased too?
I have definitely put on weight from medication too...and it doesn't help that I feel less enthusiasm to move or be active :(
Izzyjamal
Good advisor
Izzyjamal
Last activity on 28/11/2020 at 09:22
Joined in 2015
72 comments posted | 34 in the Muscles / Skeleton / Joints Forum
1 of their responses was helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Committed
-
Explorer
Hi,
My medication make my really thirsty but I hardly eat anything but in five years I €^€><##^^> SMA MADE ME A MONSTER!!!
My confidence is down well.. Really down!!!
I only get out to medical appointments.....
See the signature
Isabel Amaro
Cervicaldystonia
Good advisor
Cervicaldystonia
Last activity on 13/12/2020 at 12:40
Joined in 2019
34 comments posted | 10 in the Muscles / Skeleton / Joints Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
@Izzyjamal yes, it can be so hard on confidence :( Especially when it is a rare disease that no one knows anything about.
I read your testimonial and it seems so difficult...how have your doctor appointments been going recently?
Izzyjamal
Good advisor
Izzyjamal
Last activity on 28/11/2020 at 09:22
Joined in 2015
72 comments posted | 34 in the Muscles / Skeleton / Joints Forum
1 of their responses was helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Committed
-
Explorer
Good Afternoon to All!!!!!
Yes I must admit that it is a very very very rare Neuromuscular Disorder...
I did the “full round!!” But then Dr. Roberts did an EMG and when I looked to the results I knew!!!! My life finished there. The rest was horribly painful exams and it was confirmed!!!!
Dr. Roberts told me that I had SMA and I did not listen to nothing else!!!
Dr. Roberts is My Angel! He did everything that he could to control some of my symptoms!!!!
At present 5 years later I go to A Ventilation Unit because my breathing muscles have been affected!!!!!
Dr Bentley my Respiratory Consultant is an Angel as well.
Im dying I know and there is nothing that can be done!!!!
One day per one day.... I shake( my symptoms) a lot and I get frustrated with the things that I can not do!!!!
I live alone so I shout to the walls!!!!
It is not easy!!!!!! My background of 30 years of Nursing do not help!!!!!
LOVE
See the signature
Isabel Amaro
Members are also commenting on...
Living with diseases affecting muscles, joints and-or skeleton
Life after a joint replacement: Share your experiences and advice!
Unregistered member
I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!
See the best comment
Living with diseases affecting muscles, joints and-or skeleton
I'm A New Member Suffering With; Osteo Arthritis + Other Problems
Living with diseases affecting muscles, joints and-or skeleton
Life after a joint replacement: Share your experiences and advice!
Unregistered member
I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!
See the best comment
Articles to discover...
06/02/2019 | Advice
Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome
28/09/2024 | Advice
20/09/2024 | Nutrition
The Glucose Revolution: Is it the secret to weight loss and better health?
18/09/2024 | News
14/09/2024 | Advice
10/09/2024 | Advice
Preventing suicide: How to spot the warning signs and react in time?
29/08/2024 | Nutrition
Subscribe
You wish to be notified of new comments
Your subscription has been taken into account
Izzyjamal
Good advisor
Izzyjamal
Last activity on 28/11/2020 at 09:22
Joined in 2015
72 comments posted | 34 in the Muscles / Skeleton / Joints Forum
1 of their responses was helpful to members
Rewards
Good Advisor
Contributor
Committed
Explorer
LMorning My Friends!
Happy Easter 🐣 to all.
Please take some time and “shout” loud here if you suffer/live with a Muscle Disorder and what do you do every day, please!
HAPPY EASTER 🐣
HUGS 🤗 AND MY LOVE 😍
Izzy.