How long was the delay in getting your diagnosis?

I had the condition 25 years ago , hospital appointment confirmed the problem , still occurs now and hospital appointment with consultant he does the Eply manoeuvre which helps .

Well with my diabetes it was a long battle of some two years, mainly due to lazy useless GP not doing the simple inexpensive tests. I went to my doctor with my concerns, explained my symptoms and he refused to do anything. So, assuming there was nothing wrong went about my life. Two years later, feeling a bit unwell visiting my family, my diabetic Mother in Law suggested a blood sugar test on her Blood sugar monitor. Bingo, blood sugars was over 25, the norm around 4-5, so, quickly changed Doctors and got on the diabetic bandwagon. Controlling my blood sugar levels relieved the many symptoms I was suffering for the last two years, especially my eye sight.

With my neck cancer, I had a small lump that was persistant so popped to my GP, he supplied anti-biotics. It still remained so went back to the GP who reffered me to Head and Neck department at the hospital. My first visit required a quick scan on my neck and the technician said yes it is cancer. A bit of a shock as I had no idea that could be the case, caught early they could treat it. The treatment left me well damaged but I lived to fight another day.

Now I have pressure ulcers and infection on my bum, yes it does hurt. Not something I have understood before and not until the ulcers burst out did I realise what is was from the internet of course, GPs are impossible to speak to. Having a wife have blind through cataracts did not help but my phone camera taking many pictures for a week, my wife finally found the matching ulcer online. Usual problem you can't get a appointment with my GP, a horrendous computer access system that works occassionally to get your GPs advice. Two days later the GP calls agrees to send anti-biotics to treat the ulcer and a appointment to see the nurse today, no doubt for some more chemicals to 'slap all over', getting. While looking after my Dad until his death I bought him an cushion with an air bag system that inflates, battered the way through the shed yesterday to find it, 'heaven at last' as the pain was insufferable. Once I have the ulcers under control I ordered a suitable cushion from China that sould allow a little support for future events. As I realised with my seditary lifestyle this has been happening before without the ulcers, just the pain. Getting old is so much fun, I am surprised there is not a 'idiots guide' somewhere, as we all follow similar routes until we we die.

Currently waiting for a diagnosis. Was sent for an urgent appointment in October. When I returned from my holiday I contacted my surgery to say I’d not heard anything and was told to contact the hospital who said they had no record of the request. Back to GP who said would resend, along with confirmation tick of it being read. And to phone next day to the hospital again. Which I did. Still not received. Back to GP who Sid secretary busy but would try again. At 525 pm that day I got a courtesy call from appointments office at hospital to say letter now on specialist desk. I explained it was supposed to be urgent to be told everyone is urgent. Today I have received an appointment for 14th December so another month to wait,!

My epilepsy diagnosis took 3 years in South Africa. I lived in Zimbabwe at the time and was sent to South Africa for testing.. After much frustration, diagnosis was eventually made.

Both my daughters and myself have battled for decades to get answers for our individual joint and spinal issues. One GP dismissed us as having "the *name* back" each time we paid him a visit; another just threw increasingly strong painkillers at us!

My eldest daughter started with knee pain at about 7 years old, they tried the usual physio, painkillers, anti-inflammatories, rubs, you name it at her to no avail. Until at 27 and pregnant with my grandson, a professor told her that she had both Ehlers Danlos Syndrome and Hypermobility Syndrome! Two years ago, after suffering with pain and swelling in her ankles and knees since she was 4, my then 34 year old daughter was told that she has the gene which causes Ankylosing Spondylitis; hurrah! We thought, finally a diagnosis...how wrong could we be? The doctors (in their wisdom) say it isn't that, she hasn't got the classic symptoms (she has, for women, we present with different pain to men!) and MRIs don't show inflammation or bone spurs. So she is still undiagnosed and in the middle of an escalated complaint to that particular hospital. I have been "diagnosed" with degenerative disc disease, osteoarthritis and the good old, 'if in doubt tell them fibromyalgia', even though I also have the gene for AS. I have the classic female symptoms...

So far a total of 100 years between us and only one with a definite diagnosis...

It took about 20 years to get a diagnosis. I was diagnosed previously with Fibromyalgia and it was taking all of the blame. I know there is a crossover of symptoms through. it wasn't until the symptoms got really bad that I insisted on an MRI. It was the numbing on the outside of my left leg that was the final giveaway. I still have Fibro plus other diseases but suffer terribly from the mix of MS and Fibro. It's killing me.

It took my doctors fifty seven and a half years to diagnose me with hypermobile Ehlers Danlos Syndrome. I've been double jointed all my life but the doctors always said it was "growing pains" until my kneecap dislocated when I was four.

I spent my adult life in agony, and finally got diagnosed with Fibro in 2015.

Likewise my gut problems I'd suffered from all my life, I was finally diagnosed with gastroparesis two years ago. They'd been treating me for IBS for decades.

It took me several years as my Doctor couldn't decide whether I had Fibromyalgia or CFS. When he retired I went to see his replacement who straight away said that after going through my notes he determined I had CFS