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- If you could get rid of one of your symptoms, which one would it be and why?
If you could get rid of one of your symptoms, which one would it be and why?
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Maggie-mae
Good advisor
@casper34 oh my I am so sorry to read this is how you feel, I am a firm believer 'is it the quantity of life or the quality?'
I'm sure you gone through all the avenues of the different pain relief but they are always finding different things don't give up, keep badgering the Dr's.
I have been looking into CBD now I'm not sure I've got the letters round the right way but it's the cannabis derivative have you looked into anything like this? It's only reading on here that I had even heard about it, so what I'm trying to say is keep looking for different ways of pain relief xx🤔 Sonia xx
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Sonia... Maggie-mae 😊
Marieb
The breathlessness gets me every time over the years I have been so active so it's killing me I can't do what I want to do then the depression sets in
Tigger.co.uk
Good advisor
I get breathless just walking from chair to the toilet sometimes it bothers me when I'm trying to shower if my trev didn't help me I don't think I could cope I'm always coughing if I talk to long I get breathless my breathing problems got worse after having radiotherapy for my breast cancer doctor says it is the start of emphysema I asked him if it would get better and he said no I just have to carry on but I have regular check ups with my chest specialist .
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JazzyC
AmbassadorGood advisor
Breathlessness is terrible, being a chronic asthmatic I sympathise. Ask your Dr for some simple pulmonary rehab exercises. These are breathing exercises, seated exercises and work upto gentle walking type exercises. It won't cure it but it makes it easier to manage and stops some of the panicy feeling you can get.
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Janet Collins
MaggiD
Good advisor
The awful tiredness ...
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Love Marg xxxxx
Griffin
All the pain so I can walk normal and do lots of things people do everyday. It would also help my fatigue as well if the pain goes
Tigger.co.uk
Good advisor
I have been waiting for rehabilitation excercise I had a phone call the other week to say that I am getting an appointment in the middle of June but I haven't heard nothing since then but I am seeing my chest specialist in July hopefully he can help me more as it getting worse I am coughing most of the day fingers crossed.
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Neil1964
Good advisor
i get breathless even bending down to put my shoes on or even trying to walk around super markets
weefeemcdee
Good advisor
Loss of my core strength when I get tired when I have overdone things.....I end up feeling like a little old lady - unable to stand up straight.
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Fi x
Maggie-mae
Good advisor
I have tremor in my hands and the simplest tasks can take me forever grrrrrrr! Not painful, not life threatening just so blasted frustrating 😠
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Sonia... Maggie-mae 😊
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JosephineO
Community managerGood advisor
Hello everyone,
With chronic illness comes difficult symptoms. We thought we would start a discussion today asking you, if you could get rid of one of your symptoms, which one it be and why?
Tell us in the comments below :)