“One thing no one sees about my illness is…”

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Somya.P

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31/07/2025 at 17:20

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Somya.P

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Hey everyone, how are you doing today?

Chronic illness often hides in plain sight. There are symptoms we can name… and then there are the parts no one sees:

The mental load of managing flare-ups.
The exhaustion behind a “fine.”
The guilt of cancelling …again.
The quiet grief of losing parts of the life you used to have.

🧠 This week, we want to open space for what so often goes unspoken.

👉 Finish this sentence in your own words:

“One thing no one sees about my illness is…”

You can write a sentence, a short thought, or just drop an emoji if that’s what feels right. There’s no pressure to explain or perform. Just know you’re in a space where people get it.

💙 Your story might help someone feel less alone today. We’re listening.

Take care,

Somya from the Carenity team 🌼

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susiep

31/07/2025 at 18:19

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susiep

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the pain that I go through each and every day.

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 18:19:00

Dangermouse

31/07/2025 at 18:50

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Dangermouse

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The his and lows the exaustionx

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 18:50:30

cjmmytunes

31/07/2025 at 18:59

cjmmytunes

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The mental math I have to go through each day.

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 18:59:34

VICKICOFFEY

31/07/2025 at 19:00

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VICKICOFFEY

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The constant pain I am in. Just because I opt to get up, shower and make myself presentable, people assume I am ok...If they only knew the daily pain I experience.

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 19:00:56

lesmal

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31/07/2025 at 19:58

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lesmal

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The triggers, side effects of medication and seizures, the irritability, the emotional outbursts and more of living a life with epilepsy!

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Les

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 19:58:34

mjteddy

31/07/2025 at 20:10

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mjteddy

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The stress building up inside me when I'm out and about until I get home and can relax and maybe have a lie down

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Mjteddy

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 20:10:27

Littlebo

31/07/2025 at 20:36

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Littlebo

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The eye rolls and the feeling that people are thinking ,oh what again ,no matter how supportive they think they are .

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 20:36:24

Elegance12

31/07/2025 at 21:46

Elegance12

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As I get older my disability gets worse I get frustrated and all I get is what do you expect as you get older

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 21:46:26

YorkshireJayne

01/08/2025 at 08:23

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YorkshireJayne

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The amount of effort it takes to act and look "normal"! I think that people expect someone with pain and chronic illness to not care about their appearance and spend their life at home, feeling sorry for themselves.

But no, sorry, in fact, not sorry, I shouldn't be made to feel like a fraud, just for wanting to be out of the house and looking like I made an effort to look nice. I feel better when my hair is styled, I'm dressed nicely and have a slick of lipstick on! Inside every nerve and fibre is screaming at me to rest, every part of my being wants to just lay down and rest, but like hell I will!!

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Life is for living, do it, no matter what!

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-08-01 08:23:38

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VICKICOFFEY

06/08/2025 at 17:20

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VICKICOFFEY

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@YorkshireJayne I am 110% in your corner. People assume that just because we decide to drag ourselves out of bed, shower, hair, makeup, dress, and look presentable, that we must be fine. We all know what happens when people assume!

I decided years ago to NOT let my pain get the best of me. If we look good, we may feel better!!

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-08-06 17:20:01

YorkshireJayne

07/08/2025 at 07:17

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YorkshireJayne

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@VICKICOFFEY Thank you! That's so true, I always feel good and carry myself differently when I feel good about my appearance and why shouldn't we?

The DWP assessors always make a point of noting that your hair is styled, your appearance is neat and tidy and you were wearing lipstick/make-up; that really annoys me, and I always point out that we're still human beings, pain doesn't make it so that we don't care about how we look and why should it?

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Life is for living, do it, no matter what!

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-08-07 07:17:55

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Dolphin74

05/08/2025 at 19:45

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Dolphin74

Last activity on 21/08/2025 at 20:06

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On out side I can be ok but struggling on the inside

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-08-05 19:45:15

“One thing no one sees about my illness is…”

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