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  • “One thing no one sees about my illness is…”
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“One thing no one sees about my illness is…”

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avatar Somya.P

Somya.P

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31/07/2025 at 17:20

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avatar Somya.P

Somya.P

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Last activity on 31/07/2025 at 17:54

Joined in 2023


672 comments posted | 202 in the Good to know group

54 of their responses were helpful to members


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Hey everyone, how are you doing today?

Chronic illness often hides in plain sight. There are symptoms we can name… and then there are the parts no one sees:

  • The mental load of managing flare-ups.
  • The exhaustion behind a “fine.”
  • The guilt of cancelling …again.
  • The quiet grief of losing parts of the life you used to have.

🧠 This week, we want to open space for what so often goes unspoken.

👉 Finish this sentence in your own words:

“One thing no one sees about my illness is…”

You can write a sentence, a short thought, or just drop an emoji if that’s what feels right. There’s no pressure to explain or perform. Just know you’re in a space where people get it.

💙 Your story might help someone feel less alone today. We’re listening.

Take care,

Somya from the Carenity team 🌼

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avatar susiep

susiep

31/07/2025 at 18:19

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avatar susiep

susiep

Last activity on 31/07/2025 at 18:20

Joined in 2015


4 comments posted | 2 in the Good to know group

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the pain that I go through each and every day.


“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 18:19:00

avatar Dangermouse

Dangermouse

31/07/2025 at 18:50

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avatar Dangermouse

Dangermouse

Last activity on 31/07/2025 at 19:02

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8 comments posted | 1 in the Good to know group

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The his and lows the exaustionx


“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 18:50:30

avatar cjmmytunes

cjmmytunes

31/07/2025 at 18:59

avatar cjmmytunes

cjmmytunes

Last activity on 31/07/2025 at 19:07

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1 comment posted | 1 in the Good to know group

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The mental math I have to go through each day.


“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 18:59:34

avatar VICKICOFFEY

VICKICOFFEY

31/07/2025 at 19:00

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avatar VICKICOFFEY

VICKICOFFEY

Last activity on 31/07/2025 at 19:00

Joined in 2017


177 comments posted | 48 in the Good to know group

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The constant pain I am in. Just because I opt to get up, shower and make myself presentable, people assume I am ok...If they only knew the daily pain I experience.


“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 19:00:56

avatar lesmal

lesmal

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31/07/2025 at 19:58

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avatar lesmal

lesmal

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Last activity on 31/07/2025 at 20:01

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1,499 comments posted | 146 in the Good to know group

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The triggers, side effects of medication and seizures, the irritability, the emotional outbursts and more of living a life with epilepsy!

See the signature

Les


“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 19:58:34

avatar mjteddy

mjteddy

31/07/2025 at 20:10

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avatar mjteddy

mjteddy

Last activity on 31/07/2025 at 20:10

Joined in 2016


73 comments posted | 15 in the Good to know group

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The stress building up inside me when I'm out and about until I get home and can relax and maybe have a lie down

See the signature

Mjteddy


“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 20:10:27

avatar Littlebo

Littlebo

31/07/2025 at 20:36

avatar Littlebo

Littlebo

Last activity on 31/07/2025 at 20:45

Joined in 2022


3 comments posted | 2 in the Good to know group


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The eye rolls and the feeling that people are thinking ,oh what again ,no matter how supportive they think they are .


“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 20:36:24

avatar Elegance12

Elegance12

31/07/2025 at 21:46

avatar Elegance12

Elegance12

Last activity on 31/07/2025 at 21:46

Joined in 2020


1 comment posted | 1 in the Good to know group


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As I get older my disability gets worse I get frustrated and all I get is what do you expect as you get older


“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-07-31 21:46:26

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