“One thing no one sees about my illness is…”

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Somya.P

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31/07/2025 at 17:20

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Somya.P

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Last activity on 09/03/2026 at 21:33

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Hey everyone, how are you doing today?

Chronic illness often hides in plain sight. There are symptoms we can name… and then there are the parts no one sees:

The mental load of managing flare-ups.
The exhaustion behind a “fine.”
The guilt of cancelling …again.
The quiet grief of losing parts of the life you used to have.

🧠 This week, we want to open space for what so often goes unspoken.

👉 Finish this sentence in your own words:

“One thing no one sees about my illness is…”

You can write a sentence, a short thought, or just drop an emoji if that’s what feels right. There’s no pressure to explain or perform. Just know you’re in a space where people get it.

💙 Your story might help someone feel less alone today. We’re listening.

Take care,

Somya from the Carenity team 🌼

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happylad1970

10/08/2025 at 16:16

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happylad1970

Last activity on 26/01/2026 at 16:03

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That I have mobiliy problems and that I am partially-sighted.

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Johnny Baker

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-08-10 16:16:25

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happylad1970

10/08/2025 at 16:22

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happylad1970

Last activity on 26/01/2026 at 16:03

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I still try to do my best and, with the help of my Carer(sI I try to still try and do things for myself in my daily routines, which are washing up and making my bed and dusting my furniture. I am moving very soon because of urgent medical need and priority band B.

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Johnny Baker

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-08-10 16:22:41

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Elk217015

11/08/2025 at 02:01

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Elk217015

Last activity on 03/03/2026 at 23:49

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I feel they need to know how exactly MS effects everything in my life. They know what I have but that's all

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-08-11 02:01:24

Somya.P

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07/10/2025 at 09:34

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Somya.P

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Hi everyone, 💛

@william @KezzySmith @smithymo10 @piglet @lise+p-uk1 @Mulligankaren @Davidbruce @illinformed @margaretwade @syrareid @Jackiebl @KeriVine @joejoer @nuskap @PebbleCloud @laney365 @Bubblefaery @sherrill 56 @EwanCorral @WillWoosgrove @Draggy70 @Shellshake54 @mark72 @RKWILSON @Dewyl1 @EleniR @kenavy @Ann.teko @zozziejr1 @Sam1968 @suemiah @Jenniejay @bPatsy @Cindy03 @Jaqueline @FredaBurke @annafielding @RaziaH @mikesalmons @bridiemurphy @alanbofors @TopCat66 @Jansk1 @Mogaman @Cirvannah @SandreneHarley @sheilaj @Mummybunny4 @Wellington37 @Mysticdeb @Isabella1 @LynMackintosh @Thedel @Candice.S @Anita7263 @Carolgray @SWIMMER @Andrew123 @Cchinyama @Pottypete007 @Sheila#55 @Sandra1982 @Ennis110 @Mandatedmay @Suzannegabriel198 @LynnyLee @Susie74 @Doodle18 @garethr2 @Leekat @Linda21 @Linda777 @JacquiLina77 @Frustration @Rendall @Madmax1 @Hamzaa @littlemisskitty @hazyb111 @Leicester-City-Fan @marie-gabrielle+p-uk1 @Luccagriff @TheMagpie @Rita14 @Nicwoz74 @gonzalcy @Littlebo @jeremy+prd-uk-minor1 @emilieuk4 @ferret205 @MichelleThomson @lululips @EMCEE74 @Jaz1995 @DAISY1 @FionaH @Julia16 @Bluesie @Fieldofdreams @COLINMCD70

Thank you to those who have already shared — your words are so honest and powerful. For anyone who hasn’t posted yet, it’s never too late to join in.

What’s one thing about your illness that people don’t see? It can be something small, a feeling, or even just an emoji — anything that gives a glimpse into your daily life. And for those who have already shared, has anything new come up this week that you’d like to add?

Opening up, even a little, can make a huge difference for others who might feel alone. Let’s keep this safe space going. 💬

Have a great day,
Somya from the Carenity Team

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Somya from the Carenity team 🌼

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-10-07 09:34:18

happylad1970

09/10/2025 at 12:48

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happylad1970

Last activity on 26/01/2026 at 16:03

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Being partially sighter and not being good with reading and writing

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Johnny Baker

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-10-09 12:48:57

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Somya.P

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03/11/2025 at 14:55

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Somya.P

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@happylad1970 Thank you for sharing that, I can imagine how challenging that must be when so much of daily life involves reading or writing. 💛 It really takes a lot of resilience to get around the world with limited sight. Are there any tools or aids that have helped make things a bit easier for you, like screen readers or large-print resources? It might be nice to hear what’s worked for you.

Somya from the Carenity team 🌼

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Somya from the Carenity team 🌼

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-11-03 14:55:04

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mjteddy

10/10/2025 at 10:08

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mjteddy

Last activity on 24/02/2026 at 19:36

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Just how exhausting it is doing normal things like shoppping

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Mjteddy

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-10-10 10:08:59

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Somya.P

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03/11/2025 at 14:54

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Somya.P

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@mjteddy You’ve summed up something so many people with chronic conditions can relate to,how even “normal” tasks can feel exhausting. Do you find that planning your errands for certain times of day helps at all? Or do you prefer to rest and tackle them only when you feel up to it?

Somya from the Carenity team 🌼

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Somya from the Carenity team 🌼

“One thing no one sees about my illness is…” https://www.carenity.co.uk/forum/other-discussions/good-to-know/one-thing-no-one-sees-about-my-illness-is-5766 2025-11-03 14:54:10

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