Logo Carenity
Logo Carenity
Join now! Log in
flag en
flag fr flag es flag de flag it flag us
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Conditions

Fact sheets
See all - Disease index from A to Z

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Home
  • Forums
  • General forums
  • Living with COPD
  • What advice can you share about COPD?
 Back
Living with COPD

What advice can you share about COPD?

  •  1,050 views
  •  12 times supported
  •  33 comments
avatar exit

Unregistered member

Edited on 10/01/2017 at 18:51

Hi, I have just been diagnosed with COPD , I have struggled since oct thinking it was ashma. I have been given the right inhaler now so hopefully I will start to see a difference in my health. I have never smoked and so was bewildered as to why I have this . I don't know anything about it and so any advice will be gratefully received. My doctor gave me some internet sites and I have sent for some information. 

Follow

Other groups...

All things Christmas
Carenity News
Feedback for Carenity
Fun and games
Good to know
How to use Carenity
Let's talk about COVID-19
Life beyond illness
News from the media
Procedures and Paperwork
Youth patients with chronic conditions

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Survey

On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

All comments

Go to the last comment

avatar princess28

princess28

17/03/2017 at 18:09

avatar princess28

princess28

Last activity on 24/10/2020 at 10:37

Joined in 2017


7 comments posted | 4 in the Living with COPD group


Rewards

  • Contributor

  • Explorer


 View profileView  Add a friendAdd  Write

but I think that's do do with this illness he falls a sleep in the day time but hes on the go all the time i just wonder where he gets his energy from he has good days & bad days but just recently hes had more bad days than good

See the signature

lemercierjeannie


What advice can you share about COPD? https://www.carenity.co.uk/forum/other-discussions/living-with-copd/help-with-copd-1528 2017-03-17 18:09:24

avatar Scotty2

Scotty2

18/03/2017 at 11:37

Good advisor

avatar Scotty2

Scotty2

Last activity on 15/03/2026 at 17:16

Joined in 2015


69 comments posted | 20 in the Living with COPD group

8 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Committed

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

@Devon55 

I have had COPD for 19 years. I believe acid reflux was a contributor & living with a smoker. I exercise till I am short of breath & my instructor told me "do not sit down when you are short of breath, That makes your pelvis compact your lungs, instead, if you can, stand & lean sideways to the left and then to the right." It sounded silly but she was right. 

I am 75 and have improved my lung function, by taking short walks throughout the day, totalling 3 miles daily (I wear a fitbit but a pedometer from Argos is less than £5) and go to rehabilitation classes twice a week. I feel better now than I did 10 years ago, so keep pushing the boundarys. You can make improvement.


What advice can you share about COPD? https://www.carenity.co.uk/forum/other-discussions/living-with-copd/help-with-copd-1528 2017-03-18 11:37:21
avatar exit

Unregistered member

20/03/2017 at 17:13

My wife is nearing the end of life with chronic copd in and out of hospital 32times this last year alone she cannot walk or do anything at all in a wheelchair all the time how long do you think she's got ??


What advice can you share about COPD? https://www.carenity.co.uk/forum/other-discussions/living-with-copd/help-with-copd-1528 2017-03-20 17:13:40
avatar exit

Unregistered member

21/03/2017 at 08:32

@Elvis666 Sorry to hear you are going through the end with your wife, no one can predict what will happen next sadly or answer your question. I would suggest you talk to BLF helpline nurses or maybe Macmillan nurses could support you if you don't already have them. They helped me when my husband was terminal, take care.  


What advice can you share about COPD? https://www.carenity.co.uk/forum/other-discussions/living-with-copd/help-with-copd-1528 2017-03-21 08:32:39
avatar exit

Unregistered member

21/03/2017 at 15:18

Katieoxo22 thanks for your kind words my wife back in hospital this am.She goes to hospice once a week which is a great help.Not involved with MacMillan nurses so far but will make enquiries regards


What advice can you share about COPD? https://www.carenity.co.uk/forum/other-discussions/living-with-copd/help-with-copd-1528 2017-03-21 15:18:25
avatar exit

Unregistered member

22/03/2017 at 08:52

@Elvis666, that is good about the hospice, not so good about return to hospital. Some hospitals have Macmillan nurses on site might be worth asking if only to give you support. Take care 


What advice can you share about COPD? https://www.carenity.co.uk/forum/other-discussions/living-with-copd/help-with-copd-1528 2017-03-22 08:52:28

avatar Thortwenty

Thortwenty

22/03/2017 at 17:25

Good advisor

avatar Thortwenty

Thortwenty

Last activity on 14/08/2021 at 13:24

Joined in 2017


24 comments posted | 2 in the Living with COPD group


Rewards

  • Good Advisor

  • Contributor

  • Explorer


 View profileView  Add a friendAdd  Write

hi i wonder if anyone out there has r/h as well as c.o.p.d. i have to take humira injections every two weeks to surpres my immune system i end up getting a lot of chest infections one after the other,i live bye the sea so have very good air to breath.


What advice can you share about COPD? https://www.carenity.co.uk/forum/other-discussions/living-with-copd/help-with-copd-1528 2017-03-22 17:25:31

avatar MalcWest333

MalcWest333

24/04/2017 at 23:18

avatar MalcWest333

MalcWest333

Last activity on 22/09/2021 at 09:36

Joined in 2015


5 comments posted | 1 in the Living with COPD group


Rewards

  • Committed

  • Explorer


 View profileView  Add a friendAdd  Write

Hi, I have C.o.P. D and find the inhalers useless too, It's not too bad most of the time, but I do keep getting chest infections that barely clear up before I get the next one. 

See the signature

Malc West


What advice can you share about COPD? https://www.carenity.co.uk/forum/other-discussions/living-with-copd/help-with-copd-1528 2017-04-24 23:18:00

avatar Scotty2

Scotty2

01/08/2017 at 04:43

Good advisor

avatar Scotty2

Scotty2

Last activity on 15/03/2026 at 17:16

Joined in 2015


69 comments posted | 20 in the Living with COPD group

8 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Committed

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

Still fighting to maintain the best quality of life. I have just been changed from Spireva to Anoro. So far so good. Notice one of the side effects is a dry mouth.

i find a swish of water round my mouth lessens this. Why is no one ever told to take water after an inhaler? Hi 


What advice can you share about COPD? https://www.carenity.co.uk/forum/other-discussions/living-with-copd/help-with-copd-1528 2017-08-01 04:43:41
avatar exit

Unregistered member

02/08/2017 at 08:05

Hi Scotty2, you are right doctors and nurses do not routinely advise on water after inhaler. However times are changing and this is being given as general advice by medics including the chemist, think it should appear on patient information leaflets myself, as lots of people do not realise the need to rinse after inhaling to prevent dry mouth and throat problems like hoarse voice.


What advice can you share about COPD? https://www.carenity.co.uk/forum/other-discussions/living-with-copd/help-with-copd-1528 2017-08-02 08:05:29
  • 1
  • 2
  • 3
  • 4

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Survey

On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

Articles to discover...

Between promise and reality: can omega-7 improve metabolic health?

18/04/2026 | Nutrition

Between promise and reality: can omega-7 improve metabolic health?

Living a healthy life with a chronic illness: is that really possible?

07/04/2026 | News

Living a healthy life with a chronic illness: is that really possible?

Is too much animal protein bad for you?

04/04/2026 | Nutrition

Is too much animal protein bad for you?

@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

25/03/2026 | Testimonial

@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

NHS - Get help with prescription costs

12/11/2019 | Procedures & paperwork

NHS - Get help with prescription costs

Diclofenac to become a prescription drug

21/01/2015 | News

Diclofenac to become a prescription drug

Opioids Causing Concerns, Problems for Chronic Pain Patients

14/10/2016 | News

Opioids Causing Concerns, Problems for Chronic Pain Patients

Do you have the winter blues?

21/10/2014 | News

Do you have the winter blues?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

Your subscription has been taken into account

Join now! Log in

About

  • Who are we?
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookies management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag de flag es flag it flag us

The www.carenity.co.uk website does not constitute or replace professional medical advice.