What is the most frustrating or difficult aspect of living with Crohn's disease?

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Courtney_J

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21/09/2020 at 13:06

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,279 comments posted | 18 in the Living with Crohn's disease group

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Hello everyone,

How have you been? I thought I would open this discussion so we can share our experiences of living with Crohn's disease!

So, what is the biggest challenge you face whilst living with Crohn's? Is it the pain, the fatigue, the digestive issues? Or is it something else? Have you had to change aspects of your daily life or routine because of it? How do you cope with these challenges?
@BREDAMC‍ @AnnieRook‍ @Anastacia1‍ @roger17‍ @lozkerry‍ @Fass100003‍ @Lkemmsa‍ @Hayldodd‍ @dot2787‍ @ClareHarbinson‍ @Kaz1968‍ @Doddsie2‍ @RMalpass‍ @Sarahanjam‍ @Carmap‍ @Shabzz26‍ @DanielW‍ @Smax123‍ @Aimi19‍ @Moodykins‍

Feel free to share your stories and experiences here!

Take care,
Courtney

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Zoe1565

20/10/2020 at 13:53

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Zoe1565

Last activity on 13/01/2022 at 16:00

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22 comments posted | 15 in the Living with Crohn's disease group

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@Courtney_J For me it's the unpredictable side of Crohn's that's the most difficult. Some days I'll be doing well and will feel "normal" if that's possible and then the next I'll be doubled over in pain not able to leave the toilet. I take my medicines and I take care of my diet, but some days it's almost unexplainable. It's no way to live.

What is the most frustrating or difficult aspect of living with Crohn's disease? https://www.carenity.co.uk/forum/other-discussions/living-with-crohns-disease/what-is-the-most-frustrating-or-difficult-aspect-of-living-with-crohns-disease-3755 2020-10-20 13:53:30

Courtney_J

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03/02/2022 at 11:40

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,279 comments posted | 18 in the Living with Crohn's disease group

11 of their responses were helpful to members

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Hi everyone, how are you doing?

Have you seen the results from our latest IBD survey? Here's the link: What is the impact of chronic inflammatory bowel disease (IBD)? Carenity members share their experience!

What about you? How does your Crohn's disease affect your daily life? What is the most challenging thing about it?

@LilacWitch @Kl180483 @CandiceT @Nikkicross @Hoofee @Kezy1234 @Julieharr @Debsc66 @Janray @jonnygers @Nick1957 @AbbieB228 @TC1997 @Angie62 @Lynsey @Noel265 @Shirley1972 @Silla23 @Kels79 @MariaMcbride

Take care,

Courtney

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Courtney_J, Community Manager, Carenity UK

JaneAir

19/04/2022 at 23:55

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JaneAir

Last activity on 23/08/2023 at 17:47

Joined in 2016

18 comments posted | 12 in the Living with Crohn's disease group

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Hi everybody, for me the hardest thing was, and is, to keep working. I am working part time now as I just couldn't manage a full time job with all that was going on in my life...crohn's, allergies and family issues on top of everything! But I am happy I got to keep my job, and avoid depression (I was on the brink of it then).

What is the most frustrating or difficult aspect of living with Crohn's disease?

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