Fibromyalgia and Chronic Pain

189 views
2 times supported
8 comments

JosephineO

Community manager

18/10/2018 at 09:55

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 22 in the Living with fibromyalgia group

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

Fibromyalgia and Chronic Pain

On the occasion of the World Day Against Pain on the 15th October, Carenity offers a week of publications dedicated to the fight against chronic pain. Today, we are interested in fibromyalgia, a painful and unknown disease.

pain

What is fibromyalgia?

Fibromyalgia is a chronic disease whose symptoms are mostly composed of intense muscle pain. These pains mainly affect the symmetrical muscle areas near the spine, such as the neck, shoulders, inter-scapular region (between the shoulders), shoulder blades, lower back and hips. The American College of Rheumatology states that fibromyalgia is characterised by at least three months of pain on at least 11 of the 18 characteristic body points of the disease, some of which are listed above. This definition can help diagnosis but is not satisfactory because it does not cover the reality for all patients.

>> Discover the symptoms of fibromyalgia <<

An illness difficult to diagnose

Fibromyalgia is not easily diagnosed: it looks like other diseases such as rheumatoid arthritis, ankylosing spondylitis, chronic fatigue, irritable bowel syndrome, migraines or even psychological difficulties. Many people find themselves in a situation of not even knowing if they are affected or being diagnosed with a different condition.

Difficulties to maintain a fulfilling professional life

The patients know it only too well: it is often very complicated for your work colleagues to understand why you are missing work at times. We asked some members of Carenity and @Juliejools34‍ has stated that they feel, “the real struggle is to get others to understand the condition and the consequences it has for me.” The questioning from colleagues is also exhausting, “Some days I am on crutches, and I feel I have to justify why I need them and it’s exhausting dealing with the onslaught of questions that come with using them”

A lack of understanding exists around fibromyalgia which can impact patients mentally as they feel people don’t believe them.

Various symptoms and multiple treatments

In addition to the muscular pains associated with the disease, some members of Carenity have also shared symptoms such as @frannygee‍, “acid reflux, migraines and hiatus hernia”. This is one of the reasons that it is so hard to diagnose and pinpoint, the symptoms can differ from patient to patient and can have a fluctuating severity.

Check out our discussions on the forum dedicated to fibromyalgia, including the group on the daily realities of our members.

And most importantly, share your experience!

All comments

grandmasue58

30/10/2018 at 14:55

grandmasue58

Last activity on 07/09/2022 at 12:59

Joined in 2018

3 comments posted | 2 in the Living with fibromyalgia group

Rewards

Explorer

View profileView Add a friendAdd Write

I was diagnosed with fibromyalgia after the death of my Mother in 2010 my rheumatologist thinks it was the shock of loosing my mum that set my fibromyalgia off. I suffer with very very bad pain in all my muscles and nerve endings then this sets off lots of different ailments ..... headaches. Sclerosis. No smell. No taste.dry mouth. Very sore mouth. Rotting gums/crumbling teeth. Upset stomach. Constipation. Urine infections. Hot sweats. To name a few. I take lots of hot baths which helps the pain slightly but then I am worn out . I am also on lots of medication.

See the signature

Susan Renshaw.

Fibromyalgia and Chronic Pain https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-and-chronic-pain-2592 2018-10-30 14:55:54

JosephineO

Community manager

Edited on 31/12/2018 at 10:17

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 22 in the Living with fibromyalgia group

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@grandmasue58‍ I am sorry to hear about the pain you'r going through. There are a lot of interesting articles and discussions on the fibro forum, so please don't hesitate to reach out in making discussions or contacting other members who are suffering too.

We recently published some very helpful articles about pain management, such as our article about apps to help you manage pain. We also have another forum that is linked directly towards pain, called "living with chronic pain", which I recommend you subscribe to.

If you are on a lot of medication then i recommend that you use our medication tracker, this way you can see other opinions on medication and track your own. Just follow this link.

Please don't hesitate to message me if you have any questons at all or if you would be interested in doing a testimonial :)

See the signature

Josephine, Community Manager

Fibromyalgia and Chronic Pain https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-and-chronic-pain-2592 2018-10-30 15:13:34

Sickofpain

24/12/2018 at 13:59

Good advisor

Sickofpain

Last activity on 13/12/2023 at 10:35

Joined in 2016

32 comments posted | 6 in the Living with fibromyalgia group

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

I've been diagnosed with fibromyalgia since 2008 and have gone from a high level of pain to a severe level of pain Recently the pain in my hips has got worse and I now struggle to get around more than usual I have even had to get a wheelchair for days when the pain is at its worst the only problem with that is my arms aren't strong enough to push myself along properly so I am having to rely on others to push me. I am on a lot of medication for the pain too, but it doesn't always help and I get quite low about not being able to do the kinds of things I used to do which really upsets me sometimes.

See the signature

Chris

Fibromyalgia and Chronic Pain https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-and-chronic-pain-2592 2018-12-24 13:59:58

JosephineO

Community manager

31/12/2018 at 10:21

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 22 in the Living with fibromyalgia group

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@Sickofpain Hello,

I am sorry to hear that you're in so much pain :( It can be difficult to manage being in pain daily, I hope that Carenity has been a form of support for you as many of our members feel this way too.

You can find some interesting articles and discussions about dealing with daily pain by checking out our "living with chronic pain" forum. You could find some helpful resources there on pain management or just chatting to other members who are in pain.

I hope this helps, don't forget that you're never alone!

See the signature

Josephine, Community Manager

Fibromyalgia and Chronic Pain https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-and-chronic-pain-2592 2018-12-31 10:21:14

Sickofpain

11/01/2019 at 21:52

Good advisor

Sickofpain

Last activity on 13/12/2023 at 10:35

Joined in 2016

32 comments posted | 6 in the Living with fibromyalgia group

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

Now to make things a little more complicated I've been diagnosed with carpel tunnel syndrome and it's been aggravated by us moving our property into our new house. We had a lot of lifting and carrying to do and I took on a lot of it as my husband cannot walk very well So now I'm trying to unpack things and put them in the right place with only one usable hand

See the signature

Chris

Fibromyalgia and Chronic Pain https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-and-chronic-pain-2592 2019-01-11 21:52:27

Kaz1960

15/02/2019 at 14:13

Good advisor

Kaz1960

Last activity on 31/12/2024 at 12:41

Joined in 2017

20 comments posted | 15 in the Living with fibromyalgia group

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Iv been diagnosed by a rheumatologist about 5/6 years ago now,It really hasn’t got any better ,I use matrifin 3 day patches ,take amatriptaline 2 at night ,I’m really struggling with sleep as many others do but I don’t sleep all night ever then every few weeks I have to sleep for 48 hours on and off can not do any thing at all I’m so so tired my gp says he’s baffled and sending me to a neurologist,but there’s a 13 weeks waiting list ,has any body else seen a neurologist ?has any body else been or going threw this,?its doing my head in now,I’m either tired that much I’m in bed 48 hrs or stiff I carnt move.sorry for going on regards kaz xxx

Fibromyalgia and Chronic Pain https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-and-chronic-pain-2592 2019-02-15 14:13:42

Lynntrafford54

27/03/2019 at 20:05

Lynntrafford54

Last activity on 21/09/2020 at 17:39

Joined in 2018

4 comments posted | 2 in the Living with fibromyalgia group

Rewards

Explorer

View profileView Add a friendAdd Write

Hi kaz x are you not sleeping because your in to much pain x

Fibromyalgia and Chronic Pain https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-and-chronic-pain-2592 2019-03-27 20:05:15

Ardfert

07/05/2019 at 18:38

Ardfert

Last activity on 25/07/2021 at 15:30

Joined in 2015

14 comments posted | 7 in the Living with fibromyalgia group

Rewards

Contributor
Explorer

View profileView Add a friendAdd Write

My opinion is that LDN is the best treatment for Fibro. On average it reduces pain by 30% but it varies from no response to very good response. Look at the American website at [link removed by Moderator for violation of community standards]. for a lot of information. It works for over 200 conditions.

Fibromyalgia and Chronic Pain https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-and-chronic-pain-2592 2019-05-07 18:38:48

Fibromyalgia and Chronic Pain

All comments

Give your opinion

What do you think about the Carenity Forum and community?

Articles to discover...