Logo Carenity
Logo Carenity
Join now! Log in
flag en
flag fr flag es flag de flag it flag us
Home Forum Conditions Magazine Medications Surveys
Join now! Log in
  • Forum
  • Conditions
  • Magazine
  • Medications
  • Surveys
  • Home
  • Forums
  • General forums
  • Living with multiple sclerosis
  • Pain at night
 Back
Living with multiple sclerosis

Pain at night

  •  93 views
  •  0 support
  •  6 comments

avatar stephanyJ

stephanyJ

28/07/2017 at 16:06

Good advisor

avatar stephanyJ

stephanyJ

Last activity on 15/12/2022 at 21:19

Joined in 2017


19 comments posted | 13 in the Living with multiple sclerosis group


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

Hi, hope you all are doing good out there.

I have a question about my sister's MS: she claims to have pain and tingling in her legs at night, which makes it difficult for her to sleep. She wonders if it is one of MS symptoms and if there are others who experience the same thing.

So if anybody suffers the same, and if it is normal for MS, please let me know so that I could tell her not to worry.

Steph

Follow

Other groups...

All things Christmas
Carenity News
Feedback for Carenity
Fun and games
Good to know
How to use Carenity
Let's talk about COVID-19
Life beyond illness
News from the media
Procedures and Paperwork
Youth patients with chronic conditions

Give your opinion

Survey

What do you think about the Carenity Forum and community?

All comments

avatar MargaretP

MargaretP

01/08/2017 at 20:54

avatar MargaretP

MargaretP

Last activity on 05/05/2025 at 17:42

Joined in 2016


6 comments posted | 1 in the Living with multiple sclerosis group


Rewards

  • Contributor

  • Explorer


 View profileView  Add a friendAdd  Write

I certainly get pain and tingling at night and while I'm no expert, I do believe it's the MS. If she's worried though, it's best to talk to her doctor or MS nurse to find out for sure, and if it's a problem there are medicines that help. I'm on Baclofen and that enables me to sleep.

There is a lot of literature and on-line information about MS so reading up on it might help too.

All the very best to your sister..


Pain at night https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pain-at-night-1902 2017-08-01 20:54:33

avatar Desertflower

Desertflower

28/08/2017 at 23:19

avatar Desertflower

Desertflower

Last activity on 07/05/2025 at 11:24

Joined in 2017


5 comments posted | 4 in the Living with multiple sclerosis group


Rewards

  • Explorer

  • Evaluator


 View profileView  Add a friendAdd  Write

Hi there

Yes I have suffered with stiffness in my legs and feet now for over a year.It is one of the symptoms related to MS.The muscles tighten but don't always contract,thus leading to pain.Also the nerves are affected in MS, so again this is one of the side effects

 


Pain at night https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pain-at-night-1902 2017-08-28 23:19:49

avatar Mitchece

Mitchece

23/11/2017 at 11:18

avatar Mitchece

Mitchece

Last activity on 09/01/2021 at 09:31

Joined in 2017


2 comments posted | 2 in the Living with multiple sclerosis group


Rewards

  • Explorer


 View profileView  Add a friendAdd  Write

Yes I get a lot of pain, tingling and burning sensation in my arms and torso that has at times preventing me from sleeping. My MS nurse suggested gabapentin. I have commenced this drug and await to see if this resolves or improves this discomfort, will keep you posted.

See the signature

Cee


Pain at night https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pain-at-night-1902 2017-11-23 11:18:54

avatar Cathlea

Cathlea

15/01/2018 at 15:44

avatar Cathlea

Cathlea

Last activity on 13/04/2021 at 21:38

Joined in 2017


1 comment posted | 1 in the Living with multiple sclerosis group


Rewards

  • Explorer


 View profileView  Add a friendAdd  Write

Hi yes I get lots of MS nerve pain: burning, stinging, gnawing pain. It use to only be a problem at night and amitriptyline use to help. Unfortunately I now get it throughout the day too. I take gabapentin, amitriptyline and co-Codamol and CBD. However, I really don’t think they are working as I’m still in daily pain but some days worse than others. It is very debilitating and each day us a struggle. I try to do some yoga/stretching as the muscles get so tight. I hope your sister can get some medication to relieve her pain. 


Pain at night https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pain-at-night-1902 2018-01-15 15:44:18

avatar Desertflower

Desertflower

19/01/2022 at 09:01

avatar Desertflower

Desertflower

Last activity on 07/05/2025 at 11:24

Joined in 2017


5 comments posted | 4 in the Living with multiple sclerosis group


Rewards

  • Explorer

  • Evaluator


 View profileView  Add a friendAdd  Write

LDN is the best non toxic medication to treat MS. If you are taking Opiod drugs though they cancel out its effectiveness I read. Look up the LDN Research Trust to find out more about it.



Pain at night https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pain-at-night-1902 2022-01-19 09:01:04

avatar flowergirl

flowergirl

05/05/2022 at 21:31

Good advisor

avatar flowergirl

flowergirl

Last activity on 30/05/2023 at 22:14

Joined in 2022


16 comments posted | 8 in the Living with multiple sclerosis group

1 of their responses was helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

Hi, I see it's an old discussion but I'll comment anyway. I also get pain and tignling in my feet and sometimes in my arms as well. I think it's quite common for MS


Pain at night https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pain-at-night-1902 2022-05-05 21:31:56

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Articles to discover...

The fear of flare-ups: How to stop waiting for the worst and take back control

23/05/2025 | Advice

The fear of flare-ups: How to stop waiting for the worst and take back control

The identity shift: How to build a life that includes, but isn’t defined by, illness

05/05/2025 | Advice

The identity shift: How to build a life that includes, but isn’t defined by, illness

Medications and driving: Are your prescriptions putting you at risk behind the wheel?

26/04/2025 | Advice

Medications and driving: Are your prescriptions putting you at risk behind the wheel?

Can journaling bring real benefits for chronic illness symptoms?

25/04/2025 | Advice

Can journaling bring real benefits for chronic illness symptoms?

NHS - Get help with prescription costs

12/11/2019 | Procedures & paperwork

NHS - Get help with prescription costs

Diclofenac to become a prescription drug

21/01/2015 | News

Diclofenac to become a prescription drug

Opioids Causing Concerns, Problems for Chronic Pain Patients

14/10/2016 | News

Opioids Causing Concerns, Problems for Chronic Pain Patients

Do you have the winter blues?

21/10/2014 | News

Do you have the winter blues?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

Your subscription has been taken into account

Join now! Log in

About

  • Who are we?
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookies management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag de flag es flag it flag us

The www.carenity.co.uk website does not constitute or replace professional medical advice.