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  • What are your top tips/advice for newly diagnosed members?
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Living with multiple sclerosis

What are your top tips/advice for newly diagnosed members?

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avatar JosephineO

JosephineO

Community manager
19/03/2019 at 15:50

Good advisor

avatar JosephineO

JosephineO

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Last activity on 15/07/2024 at 09:21

Joined in 2018


989 comments posted | 44 in the Living with multiple sclerosis group

6 of their responses were helpful to members


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Hello members,

The goal of this discussion is to have members who have had the diagnosis of multiple sclerosis for about 10 or more years to give their best advice and top tips to members who have been recently diagnosed with MS on how to better accept the diagnosis, cope with the condition, and live a fulfilling life.

Members who have been diagnosed for roughly 10 or more years, Please join in on this discussion and share your wisdom.

Members who have been recently diagnosed, Please join in on the discussion, ask questions, and feel the support.

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avatar Pleasance

Pleasance

25/03/2019 at 12:09

Good advisor

avatar Pleasance

Pleasance

Last activity on 16/05/2023 at 11:23

Joined in 2014


63 comments posted | 29 in the Living with multiple sclerosis group


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I would recommend that you regularly contact your MS nurse and try and get as much information as possible. They say that "knowledge is power" and it really is.

When I was living more in town, I used to attend a support group for MS. I would recommend this highly for anyone who is newly diagnosed.

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Pleasance


What are your top tips/advice for newly diagnosed members? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-are-your-top-tipsadvice-for-newly-diagnosed-members-2772 2019-03-25 12:09:00

avatar Ginny58

Ginny58

08/04/2019 at 19:47

avatar Ginny58

Ginny58

Last activity on 30/07/2022 at 12:42

Joined in 2016


2 comments posted | 2 in the Living with multiple sclerosis group


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I was diagnosed about 6 years ago. But i went to my neurologist 3 years prior to this. Id been having symptoms i.e numbness of my hand pain in my right leg  of and on for a few years. But this time i had lermits down my neck and spine. Unfortunately after my tests i.e blood mri scan etc. they said they wasnt ruling out m.s but....they never got back to me. In the meantime i was having personal issues and i put myself to the back untill 3 years past and my symptoms got worse. So i went to my Dr. Who was fuming that id heard nothing i had to go through all the tests again after oodles of apoligies and was diagnosed with relapsing remitting m.s.  Thankfully my symptons remain stable.  At the moment im going through a bout of depression.  I feel better now ive shared this. 

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Ginny


What are your top tips/advice for newly diagnosed members? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-are-your-top-tipsadvice-for-newly-diagnosed-members-2772 2019-04-08 19:47:47

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