Have you had surgery for your epilepsy?

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JosephineO

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23/01/2019 at 17:01

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JosephineO

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Last activity on 15/07/2024 at 09:21

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989 comments posted | 10 in the Treatments for epilepsy group

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Hello,

There are two main kinds of surgery that patients can have to help with their seizures and they are:

Resective surgery. This is where the surgeon will try to remove the part of your brain that is causing you to experience seizures. It can only be carried out when the section that is causing the seizures is very small with clear boundaries and doesn't have any impact on things like your speech, movement, sight, or hearing.

Disconnective surgery. Instead of removing part of your brain, the surgeon will cut the paths between the nerves in your brain that are involved in your seizures.

Have these every been suggested to you? Would they be a possibility for you?

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MrsELarkin

19/07/2021 at 20:39

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MrsELarkin

Last activity on 15/10/2025 at 19:37

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123 comments posted | 6 in the Treatments for epilepsy group

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During my 30 year battle with Epilepsy, I was unable to return to work, even after my two daughters started school! I thought I would never beat the beast but 9 years ago today I had a Lobectomy to remove the scar tissue in my right temporal lobe hippocampus. It was successful and I'm now 6 years without a seizure! Don't ever give up hope!

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EileenL

Have you had surgery for your epilepsy? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-epilepsy-treatments/have-you-had-surgery-for-your-epilepsy-2693 2021-07-19 20:39:59

MrsELarkin

19/11/2022 at 16:59

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MrsELarkin

Last activity on 15/10/2025 at 19:37

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123 comments posted | 6 in the Treatments for epilepsy group

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I had resective Epilepsy surgery ten years ago in which scarr tissue, from my right Hippocampus was removed. It was successful, after 30 years of chronic seizures and many cocktails of meds! 18 months after surgery, I stopped taking the drug Epilim of which I took 2000mg daily for many years! It was as if my brain woke up from that moment on and my last seizure was 7 years ago!

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EileenL

Have you had surgery for your epilepsy? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-epilepsy-treatments/have-you-had-surgery-for-your-epilepsy-2693 2022-11-19 16:59:51

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05/12/2022 at 00:45

Hi all, 42 years of managing a seizure disorder here and also have had brain resection at age 24 (successful & a game-changer). My early 20's were challenging - broke through every med (I was living in the US and they are not as flexible with new drugs), and I am now 51 and seizure-free, with an occasional aura. It took many doctors and tests before I had the green light for the resection. I just moved back to London and am looking to find a terrific neurologist or even a clinic.

Have you had surgery for your epilepsy? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-epilepsy-treatments/have-you-had-surgery-for-your-epilepsy-2693 2022-12-05 00:45:22

Have you had surgery for your epilepsy?

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