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Treatments for multiple sclerosis

Seeing consultant tomorrow.

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avatar Kathrynhaslam

Kathrynhaslam

03/12/2018 at 13:48

avatar Kathrynhaslam

Kathrynhaslam

Last activity on 17/10/2020 at 15:10

Joined in 2016


4 comments posted | 4 in the Treatments for multiple sclerosis group


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18 months ago when my daughter (21yrs) became pregnant she presented with several symptoms, her balance was effected, her left eye became squinted she also had hearing problems. A scan showed many scars on her brain. It’s took months for her to get back to normal. 

All her symptoms have now gone.

She has an appointment with her neurologist tomorrow. We are not sure what questions we should be asking, should she be having a further scan to see if more scaring has appeared, should she be on medication. At her last appointment he described it as a “ Isolated incident”, and suggested we just carry on as we are. 

Any advice would be appreciated

thankyou in advance.

kathryn

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avatar Pleasance

Pleasance

03/12/2018 at 14:40

Good advisor

avatar Pleasance

Pleasance

Last activity on 16/05/2023 at 11:23

Joined in 2014


63 comments posted | 29 in the Treatments for multiple sclerosis group


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@Kathrynhaslam Hello Kathryn,

Well didn't the doctor give the reason for the scarring. There are many causes for scarring in the brain, its broad basically saying damaged brain but why?

She should ask the doctor of the cause of the scarring and if  there is a chance of it coming back in future pregnancies? And how to prevent it from happening again.

A story of how the pregnancy was going before the incident can help?

Bets of luck with it tomorrow 

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Pleasance


Seeing consultant tomorrow. https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/seeing-consultant-tomorrow-2643 2018-12-03 14:40:41

avatar Pleasance

Pleasance

04/12/2018 at 15:17

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avatar Pleasance

Pleasance

Last activity on 16/05/2023 at 11:23

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63 comments posted | 29 in the Treatments for multiple sclerosis group


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@Kathrynhaslam Hello, how did it go today? Wishing you the best.

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Pleasance


Seeing consultant tomorrow. https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/seeing-consultant-tomorrow-2643 2018-12-04 15:17:39

avatar Kathrynhaslam

Kathrynhaslam

04/12/2018 at 16:05

avatar Kathrynhaslam

Kathrynhaslam

Last activity on 17/10/2020 at 15:10

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4 comments posted | 4 in the Treatments for multiple sclerosis group


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Hi, It went well, he has requested another brain scan to compare to the one she had originally, it’s to see if anymore scaring has appeared. To be honest she is healthy and symptom free, it’s the unknown - will it reoccur , if it does when, what is the long term prognosis, lots of questions that they can’t answer. 

Hope you are ok, and thanks for asking.

kathryn.


Seeing consultant tomorrow. https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/seeing-consultant-tomorrow-2643 2018-12-04 16:05:31

avatar Pleasance

Pleasance

05/12/2018 at 11:31

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avatar Pleasance

Pleasance

Last activity on 16/05/2023 at 11:23

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63 comments posted | 29 in the Treatments for multiple sclerosis group


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@Kathrynhaslam I am glad it went well :) It will be interesting to see the differences between the two scans, it is veru worrying for you but she is young and it will be fine.

Let us know how it goes and wishing you the best.

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Pleasance


Seeing consultant tomorrow. https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/seeing-consultant-tomorrow-2643 2018-12-05 11:31:35

avatar Kathrynhaslam

Kathrynhaslam

05/12/2018 at 23:59

avatar Kathrynhaslam

Kathrynhaslam

Last activity on 17/10/2020 at 15:10

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4 comments posted | 4 in the Treatments for multiple sclerosis group


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Thanks Pleasance, your right it is a worry, I will let you know how it goes , fingers crossed. 

Kathryn. 


Seeing consultant tomorrow. https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/seeing-consultant-tomorrow-2643 2018-12-05 23:59:44

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