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Alpha-thalassemia Forum

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Medical fact sheet

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Living with a rare disease

 Living with a rare disease

How were you diagnosed with a rare disease?

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 Living with a rare disease

Living with Usher syndrome: Share your experience!

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Articles to discover...

Screens and the brain: What are the risks of overuse and how can you protect yourself?

28/06/2025 | News

Screens and the brain: What are the risks of overuse and how can you protect yourself?

Women's health: Why is medical research still falling short?

21/06/2025 | News

Women's health: Why is medical research still falling short?

Can you train your brain to feel happier, scientifically?

14/06/2025 | Advice

Can you train your brain to feel happier, scientifically?

Cognitive behavioural therapy (CBT): A way to better live with your thoughts and emotions

09/06/2025 | News

Cognitive behavioural therapy (CBT): A way to better live with your thoughts and emotions

Sports and medications: 10 drugs that could harm your athletic performance

31/05/2025 | News

Sports and medications: 10 drugs that could harm your athletic performance

The fear of flare-ups: How to stop waiting for the worst and take back control

23/05/2025 | Advice

The fear of flare-ups: How to stop waiting for the worst and take back control

The identity shift: How to build a life that includes, but isn’t defined by, illness

05/05/2025 | Advice

The identity shift: How to build a life that includes, but isn’t defined by, illness

Medications and driving: Are your prescriptions putting you at risk behind the wheel?

26/04/2025 | Advice

Medications and driving: Are your prescriptions putting you at risk behind the wheel?