Back

Alport syndrome Forum

  •  15 discussions

Medical fact sheet

Alport syndrome

All
Living with a rare disease
Living with kidney or urinary tract diseases

Living with kidney or urinary tract diseases

Brain fog and chronic kidney disease: Have you experienced it?

avatar lesmal

Living with kidney or urinary tract diseases

Chronic kidney disease: How do you manage fatigue?

avatar lesmal

Living with kidney or urinary tract diseases

CKD: How has it changed your daily routine?

avatar Somya.P

avatar lesmal

Living with kidney or urinary tract diseases

What stage of chronic kidney disease are you currently in?

avatar Glyndwr

avatar ROYuDHIN

avatar Simbas

Living with a rare disease

How were you diagnosed with a rare disease?

avatar unhappy

Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar faroes

avatar Courtney_J

Living with kidney or urinary tract diseases

Renal failure: What has your experience with dialysis been like?

avatar Courtney_J

avatar JoyceB

avatar ROYuDHIN

Living with kidney or urinary tract diseases

water infection

avatar Hope12

avatar krissie

Living with kidney or urinary tract diseases

Severe kidney infections

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Survey

On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

Survey

How were you diagnosed?

Articles to discover...

@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

25/03/2026 | Testimonial

@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

When the brain is overloaded: The hidden effects of emotional and cognitive multitasking

21/03/2026 | News

When the brain is overloaded: The hidden effects of emotional and cognitive multitasking

The smells that bring back our past: The hidden power of olfactory memory

14/03/2026 | News

The smells that bring back our past: The hidden power of olfactory memory

Soluble vs insoluble fibre: Which is better for your gut?

09/03/2026 | Nutrition

Soluble vs insoluble fibre: Which is better for your gut?

Alcohol and the desire to have children: what you need to know about fertility

07/03/2026 | News

Alcohol and the desire to have children: what you need to know about fertility

When geography determines your health: living with a rare disease far from specialised centres

28/02/2026 | News

When geography determines your health: living with a rare disease far from specialised centres

What if iodine was your brain's secret weapon?

14/02/2026 | Nutrition

What if iodine was your brain's secret weapon?

Does cancer change how we experience time?

04/02/2026 | News

Does cancer change how we experience time?