Idiopathic steroid-sensitive nephrotic syndrome Forum
Ongoing discussions - Idiopathic steroid-sensitive nephrotic syndrome
Current topics:
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- What stage of chronic kidney disease are you currently in?
Hi everyone, this is my first post on this site, a friend directed me here after seeing an ad, so I thought I'd give it a try. Does anyone else have chronic kidney disease? What stage are you current
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- Build-up of Opiods in Chronic Kidney Disease
Writing on behalf of my wife in the hope of saving others the grief. After several stays in hospital recently, not the best time to be in as no visits etc, my wife was struggling with confusion, diso
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- renal failure
I am in end stage renal failure and have been on the transplant list for just 5 months.It is hard as you don't really know if you will ever receive a kidney and the idea of dialysis is frightening.I a
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Current topics:
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- What is the most frustrating or difficult aspect of living with a rare disease?
Hello everyone, How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
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- How were you diagnosed with a rare disease?
Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @Hyak
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Current topics:
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- Coronavirus (COVID-19) - information and precautions
Hello dear members, I thought I would open this discussion as the Coronavirus (COVID-19) has been a strong news topic of late and is a pertinent topic for us here, as those with chronic health conditi
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- Telemedicine and COVID-19: What do you think?
Hello everyone, How are you today? In recent months following the COVID-19 crisis, we've seen the NHS and health care industry turn more and more to telemedecine. Now, GPs and other health professi
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- Are you going to continue to wear a face mask after you've had both vaccine jabs?
I've been thinking about this since I had my first jab 3 weeks ago. I see many advantages in continuing to wear a face mask ~LESS pollution, less bugs leading to chest and other infections, lowering
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