Nephronophtisis
Forum

Current topics:

• - Living with Usher syndrome: Share your experience!
  Hello, am new here. I have usher syndrome and have been registered blind for quite a few years. Also have glaucoma which has closed down one eye and affected central vision in other eye.  I manage q

Current topics:

• - Renal failure: What has your experience with dialysis been like?
  I am in end stage renal failure and have been on the transplant list for just 5 months.It is hard as you don't really know if you will ever receive a kidney and the idea of dialysis is frightening.I a
• - What stage of chronic kidney disease are you currently in?
  Hi everyone, this is my first post on this site, a friend directed me here after seeing an ad, so I thought I'd give it a try. Does anyone else have chronic kidney disease? What stage are you current
• - water infection
  Hi all I have had a water infection for about  6 months now and have had  lots of anti biotics a ct scan and a cystoscopy all of which have been to no avail.  I am drinking pro biotics and Cranberr