Patients Neuroendocrine tumour
Topic of the discussion
Posted on 31/08/2016 17:15
How were you diagnosed? What tests did you have to do (blood test, urine test, colonoscopy, etc)
What made you see your doctor? Or were you diagnosed during a usual check-up ?
Beginning of the discussion - 15/10/2016Your diagnosis https://www.carenity.co.uk/forum/neuroendocrine-tumor/living-with-neuroendocrine-tumour/your-diagnosis-1304
Posted on 15/10/2016 02:09
My mum was for years with diarrhea, every doctor said irritable colon. She was diagnosed when a doctor palpatedthe liver, you can imagine it was something big by that time. She got flushing as well,(got red skin and hot when she ate or drunk) doctors didn t know what was it, until she got to the Oncologo. it is possible to detect testing the hormones in the urine.
Posted on 25/11/2016 10:26
Thank you @luli31 for your feedback, and sorry to hear about your mother's diagnosis!
Posted on 30/11/2016 18:52
I had neuro endocrine tumour had a wipples procedure 7 years ago I am now worried it's back as I can't use my left arm pain is 10/10 X-ray shows nothing I'm worried sick it's in my bones
Posted on 19/12/2016 15:48
how are thing now Julie?sorry to hear about your mother
Posted on 20/12/2016 09:45
In order for the person you wish to talk to be notified about your comment, you should type "@" before typing the person's username, as I did with yours.
If you need any help on using the website, please don't hesitate to contact me.
Posted on 20/12/2016 20:12
Posted on 06/01/2017 12:03
I was experiencing extremely painful headaches. I naively put it down to work related stress so nearly a year. I put on 3 stone in weight but went to a doctor when my periods stopped. He quickly referred me to an endocrine specialist.
After an MRI scan, they confirmed a Pituitary Tumour(macroadema). Blood tests also confirmed elevated prolactin & growth hormone production
Posted on 11/04/2018 16:40
I was in turkey on holiday and got food poisoning as did few from our hotel I woke up in a private hospital and had been operated on I was told they had removed my appendix but I had already had ruptured appendix age 16 when I finally got back to UK I was sent for scans to see if a kidney had been taken as it had happened before to someone in Turkey to cut it short they discovered I had a neuro endocrine tumour on the head of my deodeum it had spread to my lymph nodes and 17 where removed in a wipples procedure I was 46 this usually happens to older people anyway I suffered terribly with pain since the wipples and they discovered my bowel and stomach hernias I had to have the wipples re opened to put a large mesh repair as my abdominal wall had collapsed I can not eat now without taking octreotide injections as I get dumping syndrome and Creon to digest my food I have terrible nerve damage and suffer great pain because of the operations scar I have diabetes and fibromyalgia also degenerative spine disease irritable bowel syndrome