Let's Introduce Ourselves: Getting to Know You

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JosephineO

Community manager

07/10/2019 at 14:47

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JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

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Hello members,

Over the last year I have really enjoyed being your Community Manager. You have all inspired me with your stories of strength facing your different conditions and you have opened my mind through reading your discussions.

It is with a heavy heart that I say goodbye to you all. emoticon frown-big I wish you all the very best going forward and I hope you all continue using Carenity and finding it a useful support tool.

It’s my pleasure to introduce Michael who will be moderating the UK forum from here on out. Be sure to give him a hearty welcome and don’t hesitate to contact him with your questions or concerns.

Much love,

Josephine

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Unregistered member

27/05/2020 at 11:46

Hi,

just catching up on stuff, I have metastic neuroendocrine cancer of the small intestine, diagnosed June 2015. I am an ambassador for Neuroendocrine Cancer UK (NCUK) formerly the Net Patient Foundation and I also write a blog about my journey:- https://crystaltipps24.com/ . Although I haven’t done one for a while😳

Let's Introduce Ourselves: Getting to Know You https://www.carenity.co.uk/forum/other-discussions/carenity-news/lets-introduce-ourselves-getting-to-know-you-2934 2020-05-27 11:46:58

Benson21

28/05/2020 at 10:43

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Benson21

Last activity on 29/12/2024 at 17:48

Joined in 2016

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Hi Michael,

I haven't been on here for sometime.

I would just like to welcome you and hope that you enjoy being part of our team.

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k clifton

Let's Introduce Ourselves: Getting to Know You https://www.carenity.co.uk/forum/other-discussions/carenity-news/lets-introduce-ourselves-getting-to-know-you-2934 2020-05-28 10:43:05

lesmal

Ambassador

28/05/2020 at 11:38

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lesmal

Ambassador

Last activity on 29/06/2025 at 11:24

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@Benson21‍... Michael has left us but I'm sure @Courtney_J‍ would love your 'Welcome' instead.

Have a great day today.

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Les

Let's Introduce Ourselves: Getting to Know You https://www.carenity.co.uk/forum/other-discussions/carenity-news/lets-introduce-ourselves-getting-to-know-you-2934 2020-05-28 11:38:10

Courtney_J

Community manager

28/05/2020 at 15:46

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Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,279 comments posted | 13 in the Carenity News group

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Hello everyone,

It's lovely to hear from you all! Thank you for your updates and kind words of welcome! I hope you are all keeping well and safe!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

Let's Introduce Ourselves: Getting to Know You https://www.carenity.co.uk/forum/other-discussions/carenity-news/lets-introduce-ourselves-getting-to-know-you-2934 2020-05-28 15:46:05

Unregistered member

21/07/2020 at 12:07

Hope the job is going ok in these strange times!!

Let's Introduce Ourselves: Getting to Know You https://www.carenity.co.uk/forum/other-discussions/carenity-news/lets-introduce-ourselves-getting-to-know-you-2934 2020-07-21 12:07:16

harland407

20/08/2020 at 16:26

harland407

Last activity on 20/08/2020 at 16:03

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Hi all, My name is Jack and i have suffered from serious eczema and to a lesser degree asthma all of my life, i have gone through many issues with it along with fights with medical professionals that just don't seem to understand how it is having serious eczema. I was listening to a discussion on the radio about how people that experience all sorts of health issues in life are among the best to help others in similar positions. So it got my thinking i want to help people where i can. There was a young boy on the local news near me that was going through a seemingly very similar journey with his eczema and having the same issues getting the correct treatment and advice. Sorry for the long intro but i would like to help who i can with sharing my experience and giving my advice where i can. If anyone know other services or organisations that i could help or perhaps volunteer my time please let me know.

Let's Introduce Ourselves: Getting to Know You https://www.carenity.co.uk/forum/other-discussions/carenity-news/lets-introduce-ourselves-getting-to-know-you-2934 2020-08-20 16:26:42

Courtney_J

Community manager

21/08/2020 at 17:25

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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@harland407 Hello harland407, welcome to the community! That is exactly what Carenity is for, sharing our experiences and supporting one another through our chronic illness! Feel free to take a look around our skin condition and asthma groups, I'll link them here:

Living with skin diseases

Living with asthma

You can also share your opinions on treatments you've tried and read those of other members here: My medications

Welcome again!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

Let's Introduce Ourselves: Getting to Know You https://www.carenity.co.uk/forum/other-discussions/carenity-news/lets-introduce-ourselves-getting-to-know-you-2934 2020-08-21 17:25:25

DMH8472

27/10/2020 at 12:16

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DMH8472

Last activity on 21/02/2023 at 10:31

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I have had Parkinson's for about 3 years but the signs of it were hidden by an autoimmune illness I have had for 8 years called CIDP. In March this year I saw a local Consultant for Parkinson's who put me onto medication called SINEMET which was supposed to have stopped the violent tremor I have. So far it hasn't worked and now have other symtoms of legs freezing. Is there anyone who can give me any idea of why the drug isn't working. I recently had an appointment with the consultant because of Covid19

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Mary hedger

Let's Introduce Ourselves: Getting to Know You https://www.carenity.co.uk/forum/other-discussions/carenity-news/lets-introduce-ourselves-getting-to-know-you-2934 2020-10-27 12:16:48

Courtney_J

Community manager

29/10/2020 at 11:26

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Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,279 comments posted | 13 in the Carenity News group

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@DMH8472 Hello DMH8472, thank you for your comment and welcome to Carenity.

This is our general discussion to introduce ourselves to other members of our site. Feel free to share your question in our Parkinson's group where more members living with Parkinson's will be able to answer. emoticon cute

Here's the link to the group: Living with Parkinson's

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

Let's Introduce Ourselves: Getting to Know You https://www.carenity.co.uk/forum/other-discussions/carenity-news/lets-introduce-ourselves-getting-to-know-you-2934 2020-10-29 11:26:54

MillyMoll

Edited on 22/11/2020 at 12:12

MillyMoll

Last activity on 22/11/2020 at 11:49

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Hi, I’m new here so not sure I’m posting in the right place. I’ve had recurrent flare up of sarcoidosis since the 80’s, was diagnosed cealiac about 5 years ago then two weeks ago diagnosed with aggressive eczema, I’ve been given hydrocortisone cream as well as mometasone furoate and demol moisturising cream, I’ve also been diagnosed with porpholyx. I’m in so much pin and the creams don’t seem to be working at all. I’m unable to see a consultant because I’m immune compromised and my doctor doesn’t want me leaving the house just now due to Covid. The eczema is on my face, legs, arms tummy and of course the pompholyx is on my hands and fingers. Please can someone offer any help. My hands are the worst right now....well, everywhere isn’t great, I’m really suffering and coming to the end of being able to cope with this.

Let's Introduce Ourselves: Getting to Know You https://www.carenity.co.uk/forum/other-discussions/carenity-news/lets-introduce-ourselves-getting-to-know-you-2934 2020-11-22 12:12:30

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