💬 What’s the most difficult symptom to cope with in your daily life?

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Somya.P

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09/10/2025 at 09:41

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Somya.P

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Hi everyone 🌼,

@sandiew @Fingers21 @sadsack @labazs @BAZWHEAT @Topaz13 @BigMacGregor @Juliette @robjmckinney @Silverlady @JanetteR @Roo1978 @MrsELarkin @Shopaholic @jamesm @Tigger.co.uk @Caroline57 @mjteddy @happylad1970 @KPangela @Jonbon31 @whitecross1955 @Popbabe @mikesalmons @joannehawkins1060 @Mandy59 @Devondeb1969 @Bettyblue10 @VICKICOFFEY @Mikejohn @Bubbles01 @lesmal @MaureenBuckley @judahtwo @Harrogate26 @Clare40 @GillianForster @annpmunday @Poppy101 @Rosetta @Libby1273 @YorkshireJayne @JillAK @jonscfc @Elk217015 @Somya.P @marymack @SP3RDN4 @mickyf @Philliscouse @MP2021 @adrinalbiya

Living with a chronic condition often means facing a variety of symptoms — some visible, others not. But among them, there’s usually one that feels the hardest to manage day after day.

💭 Is it the pain, the fatigue, the anxiety, or perhaps something less obvious like brain fog or sleep problems?
💭How do you cope with it and try to make your days a little easier?
💭And has anything — treatment, routine, mindset — really helped you along the way?

Your experiences might help others feel less alone and discover new ways to manage their symptoms 💚

Take care,
Somya from the Carenity Team 🌸

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westie2803

11/04/2026 at 12:04

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westie2803

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I find that the constant battle with muscle weakness and pain plus the joint pain and limited joint movement impact my mental health. I don’t sleep well and get so tired at times that I just want to give in so I take time out by visiting a family member and just chatting, drinking tea and having a laugh out of my own environment. Sometimes I feel that my home is a toxic environment and take solace in the garden. Brain fog is such a nuisance as I am always losing things, forgetting what I went into a room for etc very irritating as my family keep thinking I have dementia but checks at the Drs rules that out which my family think is wrong as it is constant and has been for a long time

💬 What’s the most difficult symptom to cope with in your daily life? https://www.carenity.co.uk/forum/other-discussions/good-to-know/whats-the-most-difficult-symptom-to-cope-with-5843 2026-04-11 12:04:23

robjmckinney

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11/04/2026 at 12:43

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robjmckinney

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Definately pain!

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robjmckinney

lesmal

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13/04/2026 at 16:55

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lesmal

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Tiredness and lack of sleep are my main issues. I've been on many medications for epilepsy and now weaning off levetiracetam. My neurologist has given me clonazepam which has definitely helped me sleep better.

Irritability and emotional upsets have come as side effects from levetiracetam but I now feel better and hope the seizures will settle down once off the meds.

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Les

Junelle

25/04/2026 at 18:34

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Lack of sleep because of pain

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Tigger.co.uk

26/04/2026 at 10:45

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@Junelle lack of sleep and breathing problems so not feeling at my best

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chrissie2018

11/05/2026 at 12:53

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@Tigger.co.uk huge hugs I know what you mean by lack of sleep

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chrissie2018

09/05/2026 at 09:16

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My sleep pattern is bad I wake up still tired. My arthritis pain doesn't help me each day. Even though I take medication the pain is still there

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C Newton

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Tigger.co.uk

12/05/2026 at 18:56

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@chrissie2018 I'm definitely like that my knees get very painful I get pains in my back, it's worse when I start coughing the pain is hard to cope with, I do take medication for it but it is still painful, when I go out I don't go out on my own my husband is always with me, but it's a good job because I can be walking with my rollator and my knees will just go and if he is not there then I would panic and things would get worse, now my husband thinks because I'm in pain more I should use my scooter more, so I will be using that a little more but I will still try to use my rollator,

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Elk217015

10/05/2026 at 02:18

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I've really find it hard having MS,and it seems like it's that & so much more! I have MS , ulcercolitis, Stage 4 kidney disease, which I do Dialysis two days a week, may Have blockage after a heart attack in 2021, I'm really just fighting with it all, but I'm going forward

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Mikejohn

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10/05/2026 at 16:09

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@Elk217015 well I suppose I thank god I don’t have an major problem apart from monitoring my blood pressure but I feel for people who have certain problems

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westie2803

11/05/2026 at 09:59

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@Elk217015 you are a very strong woman

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💬 What’s the most difficult symptom to cope with in your daily life?

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