Logo Carenity
Logo Carenity
Join now! Log in
flag en
flag fr flag es flag de flag it flag us
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Conditions

Fact sheets
See all - Disease index from A to Z

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Home
  • Forums
  • General forums
  • Good to know
  • 💬 What’s the most difficult symptom to cope with in your daily life?
 Back
Good to know

💬 What’s the most difficult symptom to cope with in your daily life?

  •  212 views
  •  37 times supported
  •  55 comments

avatar Somya.P

Somya.P

Community manager
09/10/2025 at 09:41

Good advisor

avatar Somya.P

Somya.P

Community manager

Last activity on 10/04/2026 at 14:49

Joined in 2023


1,007 comments posted | 341 in the Good to know group

96 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

Hi everyone 🌼,

@sandiew @Fingers21 @sadsack @labazs @BAZWHEAT @Topaz13 @BigMacGregor @Juliette @robjmckinney @Silverlady @JanetteR @Roo1978 @MrsELarkin @Shopaholic @jamesm @Tigger.co.uk @Caroline57 @mjteddy @happylad1970 @KPangela @Jonbon31 @whitecross1955 @Popbabe @mikesalmons @joannehawkins1060 @Mandy59 @Devondeb1969 @Bettyblue10 @VICKICOFFEY @Mikejohn @Bubbles01 @lesmal @MaureenBuckley @judahtwo @Harrogate26 @Clare40 @GillianForster @annpmunday @Poppy101 @Rosetta @Libby1273 @YorkshireJayne @JillAK @jonscfc @Elk217015 @Somya.P @marymack @SP3RDN4 @mickyf @Philliscouse @MP2021 @adrinalbiya

Living with a chronic condition often means facing a variety of symptoms — some visible, others not. But among them, there’s usually one that feels the hardest to manage day after day.

💭 Is it the pain, the fatigue, the anxiety, or perhaps something less obvious like brain fog or sleep problems?
💭How do you cope with it and try to make your days a little easier?
💭And has anything — treatment, routine, mindset — really helped you along the way?

Your experiences might help others feel less alone and discover new ways to manage their symptoms 💚

Take care,
Somya from the Carenity Team 🌸

Follow

Other groups...

Good to know
All things Christmas
Carenity News
Feedback for Carenity
Fun and games
How to use Carenity
Let's talk about COVID-19
Life beyond illness
News from the media
Procedures and Paperwork
Youth patients with chronic conditions

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

All comments

Go to the last comment

avatar westie2803

westie2803

11/04/2026 at 12:04

avatar westie2803

westie2803

Last activity on 11/04/2026 at 12:04

Joined in 2015


6 comments posted | 1 in the Good to know group


Rewards

  • Committed

  • Explorer


 View profileView  Add a friendAdd  Write

I find that the constant battle with muscle weakness and pain plus the joint pain and limited joint movement impact my mental health. I don’t sleep well and get so tired at times that I just want to give in so I take time out by visiting a family member and just chatting, drinking tea and having a laugh out of my own environment. Sometimes I feel that my home is a toxic environment and take solace in the garden. Brain fog is such a nuisance as I am always losing things, forgetting what I went into a room for etc very irritating as my family keep thinking I have dementia but checks at the Drs rules that out which my family think is wrong as it is constant and has been for a long time


💬 What’s the most difficult symptom to cope with in your daily life? https://www.carenity.co.uk/forum/other-discussions/good-to-know/whats-the-most-difficult-symptom-to-cope-with-5843 2026-04-11 12:04:23

avatar robjmckinney

robjmckinney

Ambassador
11/04/2026 at 12:43

Good advisor

avatar robjmckinney

robjmckinney

Ambassador

Last activity on 12/04/2026 at 23:10

Joined in 2015


648 comments posted | 111 in the Good to know group

66 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Committed

  • Explorer

  • Evaluator


 View profileView  Add a friendAdd  Write

Definately pain!

See the signature

robjmckinney


💬 What’s the most difficult symptom to cope with in your daily life? https://www.carenity.co.uk/forum/other-discussions/good-to-know/whats-the-most-difficult-symptom-to-cope-with-5843 2026-04-11 12:43:37

avatar lesmal

lesmal

Ambassador
13/04/2026 at 16:55

Good advisor

avatar lesmal

lesmal

Ambassador

Last activity on 13/04/2026 at 17:17

Joined in 2018


1,563 comments posted | 167 in the Good to know group

86 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Committed

  • Explorer

  • Evaluator


 View profileView  Add a friendAdd  Write

Tiredness and lack of sleep are my main issues. I've been on many medications for epilepsy and now weaning off levetiracetam. My neurologist has given me clonazepam which has definitely helped me sleep better.

Irritability and emotional upsets have come as side effects from levetiracetam but I now feel better and hope the seizures will settle down once off the meds.

See the signature

Les


💬 What’s the most difficult symptom to cope with in your daily life? https://www.carenity.co.uk/forum/other-discussions/good-to-know/whats-the-most-difficult-symptom-to-cope-with-5843 2026-04-13 16:55:17
  • 1
  • 2

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Articles to discover...

Living a healthy life with a chronic illness: is that really possible?

07/04/2026 | News

Living a healthy life with a chronic illness: is that really possible?

Is too much animal protein bad for you?

04/04/2026 | Nutrition

Is too much animal protein bad for you?

@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

25/03/2026 | Testimonial

@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

When the brain is overloaded: The hidden effects of emotional and cognitive multitasking

21/03/2026 | News

When the brain is overloaded: The hidden effects of emotional and cognitive multitasking

NHS - Get help with prescription costs

12/11/2019 | Procedures & paperwork

NHS - Get help with prescription costs

Diclofenac to become a prescription drug

21/01/2015 | News

Diclofenac to become a prescription drug

Opioids Causing Concerns, Problems for Chronic Pain Patients

14/10/2016 | News

Opioids Causing Concerns, Problems for Chronic Pain Patients

Do you have the winter blues?

21/10/2014 | News

Do you have the winter blues?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

Your subscription has been taken into account

Join now! Log in

About

  • Who are we?
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookies management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag de flag es flag it flag us

The www.carenity.co.uk website does not constitute or replace professional medical advice.