Logo Carenity
Logo Carenity
Join now! Log in
flag en
flag fr flag es flag de flag it flag us
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Conditions

Fact sheets
See all - Disease index from A to Z

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Home
  • Forums
  • General forums
  • Living with fibromyalgia
  • Do people around you understand your condition?
 Back
Living with fibromyalgia

Do people around you understand your condition?

  •  183 views
  •  4 times supported
  •  13 comments

avatar Margarita_k

Margarita_k

13/04/2018 at 13:37

Good advisor

avatar Margarita_k

Margarita_k

Last activity on 07/10/2020 at 11:39

Joined in 2016


1,195 comments posted | 40 in the Living with fibromyalgia group

2 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Committed

  • Explorer

  • Evaluator


 View profileView  Add a friendAdd  Write

Fibromyalgia can be considered an invisible disease, as there may be no outside signs of it, despite the constant pain. This makes people around you think that there is nothing wrong with you, and yet the disease is there.

Have you ever encountered misunderstanding and negative reactions from people? How did you cope?

How do you usually explain your condition to others? Do you find it easy?

Your stories are more than welcome! Don't be shy - the aim of this site is to let you speak up and help each other. emoticon wink

Follow

Other groups...

All things Christmas
Carenity News
Feedback for Carenity
Fun and games
Good to know
How to use Carenity
Let's talk about COVID-19
Life beyond illness
News from the media
Procedures and Paperwork
Youth patients with chronic conditions

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

How do you use Carenity? Share your experience!

All comments

Go to the last comment

avatar Cece54

Cece54

21/08/2018 at 01:11

avatar Cece54

Cece54

Last activity on 31/05/2020 at 21:59

Joined in 2015


5 comments posted | 5 in the Living with fibromyalgia group


Rewards

  • Committed

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

yr having a laugh . as much chance of that as a pig flying to the moon  

See the signature

Celia


Do people around you understand your condition? https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/do-people-around-you-understand-your-condition-2270 2018-08-21 01:11:12
avatar exit

Unregistered member

26/08/2018 at 16:29

i started writing a blog today on living with fibromyalgia might be worth a read maybe please share everywhere i want to help people diaryofadisability.wordpress.com


Do people around you understand your condition? https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/do-people-around-you-understand-your-condition-2270 2018-08-26 16:29:15

avatar JosephineO

JosephineO

Community manager
18/12/2018 at 12:21

Good advisor

avatar JosephineO

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018


989 comments posted | 22 in the Living with fibromyalgia group

6 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Committed

  • Explorer

  • Evaluator

  • Friend


 View profileView  Add a friendAdd  Write

@diaryofadisability @Cece54 Here is an article that we recently published about helping your loved ones understand your chronic condition, you can access it by clicking here.

I hope you find it helpful :)

See the signature

Josephine, Community Manager


Do people around you understand your condition? https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/do-people-around-you-understand-your-condition-2270 2018-12-18 12:21:14
  • 1
  • 2

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

How do you use Carenity? Share your experience!

Articles to discover...

Inflammation and diet: Which foods to avoid and what to eat instead

02/07/2025 | Nutrition

Inflammation and diet: Which foods to avoid and what to eat instead

Screens and the brain: What are the risks of overuse and how can you protect yourself?

28/06/2025 | News

Screens and the brain: What are the risks of overuse and how can you protect yourself?

Women's health: Why is medical research still falling short?

21/06/2025 | News

Women's health: Why is medical research still falling short?

Can you train your brain to feel happier, scientifically?

14/06/2025 | Advice

Can you train your brain to feel happier, scientifically?

NHS - Get help with prescription costs

12/11/2019 | Procedures & paperwork

NHS - Get help with prescription costs

Diclofenac to become a prescription drug

21/01/2015 | News

Diclofenac to become a prescription drug

Opioids Causing Concerns, Problems for Chronic Pain Patients

14/10/2016 | News

Opioids Causing Concerns, Problems for Chronic Pain Patients

Do you have the winter blues?

21/10/2014 | News

Do you have the winter blues?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

Your subscription has been taken into account

Join now! Log in

About

  • Who are we?
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookies management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag de flag es flag it flag us

The www.carenity.co.uk website does not constitute or replace professional medical advice.