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  • Biotherapy and COVID-19: Has the virus had an impact on your treatment?
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Living with Infection - Inflammation - Immune system diseases

Biotherapy and COVID-19: Has the virus had an impact on your treatment?

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avatar Courtney_J

Courtney_J

Community manager
03/04/2020 at 00:00

Good advisor

avatar Courtney_J

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020


1,279 comments posted | 4 in the Living with Infection - Inflammation - Immune system diseases group

11 of their responses were helpful to members


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Hello everyone

How are you doing?

Biotherapies (Enbrel, Humira, Remicade, Simponi...) are treatments that lead to a decline in immune responses (immunosuppressants).
Patients who use these treatments are therefore at a higher risk of complications due to the COVID-19 infection.

Are you currently undergoing biotherapy and have an autoimmune disease (ankylosing spondylitis, rheumatoid polyarthritis, chronic inflammatory bowel disease, psoriasis...)? Then this discussion is for you!

Please don't hesitate to ask any questions you may have, or to share information on biotherapies in the context of the pandemic!

If you have been infected with COVID-19, do not hesitate to share your story

If you haven't seen already, here is our comprehensive article on the coronavirus and chronic illness where you will find a lot of useful information: Coronavirus and Chronic Illness

Take care,

Courtney

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avatar exit

Unregistered member

03/05/2020 at 01:53

Annabel

You are so very right. If you stop any treatment because of a 'flare up' you will become more at risk of contracting the blessed virus, because your body will be 'fighting' the 'flare up' and the virus. It's the drugs that are keeping you on the level, as it were.

Take Care

STAY SAFE

Richard


Biotherapy and COVID-19: Has the virus had an impact on your treatment? https://www.carenity.co.uk/forum/other-discussions/living-with-infection-inflammation-immune-syst/biotherapy-and-covid19-has-the-virus-had-an-impact-on-your-treatment-3155 2020-05-03 01:53:03

avatar Goldilox

Goldilox

07/05/2020 at 11:51

avatar Goldilox

Goldilox

Last activity on 01/11/2020 at 13:31

Joined in 2018


9 comments posted | 2 in the Living with Infection - Inflammation - Immune system diseases group


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@Angeline666 hi im on same medication and variety of others for my heart iv stopped both my PA medications out of fear but have flared up really bad im also very scared and dont no what too do consultant advised i restart but half my methotrexate but im still too scared its a big worry iv been told too shield and have been for 8 weeks i hope you are keeping safe and much love too you all ❤


Biotherapy and COVID-19: Has the virus had an impact on your treatment? https://www.carenity.co.uk/forum/other-discussions/living-with-infection-inflammation-immune-syst/biotherapy-and-covid19-has-the-virus-had-an-impact-on-your-treatment-3155 2020-05-07 11:51:08

avatar Goldilox

Goldilox

07/05/2020 at 11:54

avatar Goldilox

Goldilox

Last activity on 01/11/2020 at 13:31

Joined in 2018


9 comments posted | 2 in the Living with Infection - Inflammation - Immune system diseases group


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@richard0804 so its best for me too restart my meds my consultant didmt make me feel very positive about doing so he said was positives and negatives but too halve methotrexate and resart im so so confused my brother passed away from this awful covid i havnt had contact with him or anyone else in 8 weeks as a number of health issues all stay safe 


Biotherapy and COVID-19: Has the virus had an impact on your treatment? https://www.carenity.co.uk/forum/other-discussions/living-with-infection-inflammation-immune-syst/biotherapy-and-covid19-has-the-virus-had-an-impact-on-your-treatment-3155 2020-05-07 11:54:15
avatar exit

Unregistered member

08/05/2020 at 01:34

Hello Goldilox

I my opinion  I think that it's very irresponsible of any consultant to leave you not knowing what to do. He should give you a definite answer one way or the other as to what course of action you should take. Personally. I would re-start my methotrexate at the lower dose and build up to to the normal dose by 2.5 mg increments, fortnightly, until I was back at my usual level.

Don't go straight back to your usual dose straight away because it could cause problems.

Ring and check with your GP to make certain.

Take Care Dear Friend

STAY SAFE

Regards   Richardemoticon rose


Biotherapy and COVID-19: Has the virus had an impact on your treatment? https://www.carenity.co.uk/forum/other-discussions/living-with-infection-inflammation-immune-syst/biotherapy-and-covid19-has-the-virus-had-an-impact-on-your-treatment-3155 2020-05-08 01:34:37

avatar Chris59

Chris59

17/05/2020 at 10:45

avatar Chris59

Chris59

Last activity on 23/05/2020 at 09:32

Joined in 2017


1 comment posted | 1 in the Living with Infection - Inflammation - Immune system diseases group


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Hi 

I am on methotrexate and Rituximab, have been self isolating since March,on consultant advise ,I work for NHS admin and am able to work from home thankfully .I am extremely anxious of contracting COVID19,now lockdown easing ,am still not going out .Not sure of government guidelines on vunerable people now. 

Take Care everyone 

See the signature

Chris


Biotherapy and COVID-19: Has the virus had an impact on your treatment? https://www.carenity.co.uk/forum/other-discussions/living-with-infection-inflammation-immune-syst/biotherapy-and-covid19-has-the-virus-had-an-impact-on-your-treatment-3155 2020-05-17 10:45:11
avatar exit

Unregistered member

22/05/2020 at 01:54

Hi Chris

I hope you and yours are in good health? My wife and I are just about managing? I suffer from many pathologies, 3 heart attacks, Ankylosing Spondylitis, Diabetic Type II, Hyper tension, Obstructive Sleep Apnoea, Micro Vascular Angina, plus a couple more???...lol...lol 40+ Tablets per day and a minimum of 6 injections a day... I'll not LET THE BAR STEWARDS BEAT ME..  Have a look at my testimonial, if you like?

Think POSITIVE Chris. I have NOT been away from home since the 18th of March. How long must I stay in 'lockdown' Easy... Until I feel safe....  You must do whatever YOU think is right for YOU.  

Take Care and Please STAY SAFE

Best Wishes Richard


Biotherapy and COVID-19: Has the virus had an impact on your treatment? https://www.carenity.co.uk/forum/other-discussions/living-with-infection-inflammation-immune-syst/biotherapy-and-covid19-has-the-virus-had-an-impact-on-your-treatment-3155 2020-05-22 01:54:49

avatar Courtney_J

Courtney_J

Community manager
09/06/2020 at 11:41

Good advisor

avatar Courtney_J

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020


1,279 comments posted | 4 in the Living with Infection - Inflammation - Immune system diseases group

11 of their responses were helpful to members


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Good morning everyone,

How are you today? emoticon cute

How are you coping with your conditions in this post lockdown period? Have you changed your treatments or routines? Have you seen a change in symptoms? Feel free to share here!

Also, if you haven't seen it already, we recently published the results of our COVID-19 & Biotherapy survey you may have participated in! I'll link it here for you if you're interested: COVID-19 & Biologics: Patients Share Their Experience

Let us know what you think of the results! Do they surprise you? Are they as you thought? Feel free to share your thoughts in the comment section below the article!

Take care,
Courtney

See the signature

Courtney_J, Community Manager, Carenity UK


Biotherapy and COVID-19: Has the virus had an impact on your treatment? https://www.carenity.co.uk/forum/other-discussions/living-with-infection-inflammation-immune-syst/biotherapy-and-covid19-has-the-virus-had-an-impact-on-your-treatment-3155 2020-06-09 11:41:09
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