- Home
- Share
- Forum
- Multiple sclerosis Forum
- Living with multiple sclerosis
- MS and the Coronavirus - How are you handling the pandemic?
Patients Multiple sclerosis
MS and the Coronavirus - How are you handling the pandemic?
- 1,717 views
- 49 times supported
- 64 comments
All comments
Go to the last comment
LindaBlacker
Good advisor
I also have secondary ms. In total I've had ms going on for forty one yrs now. I broke my hip june last yr 2020. I walked next day with a Zimmer frame. The pain was indescribable. I pushed through the pain. At least in walking with a stick. Just because your diagnosed with ms doesnt means you cant even try to push everyday. Otherwise the ms will take over. That's the end
LindaBlacker
Good advisor
I have my vaccine for covid tomorrow at noon. I'm a bit nervous as I dont think enough research on the vaccine has been done looking at long term. But here goes I've managed to get a lift to and fro by a kind Gentleman doing volunteering his time to help the vulnerable.
LindaBlacker
Good advisor
Had my covid vaccine yesterday my arm is swollen and black. Went straight home to bed. Lucky for me my fiance cooked tea. Felt wiped out now my arm is rock hard feels hot inside
cwright17
Good advisor
Hi Courtney 👋 now, I wasn't given any special instructions, because I'd started ocrevus in June 2021, but I had used the BNF to look it up and how I can get infected more easily. However, I didn't leave the house much anyway, and it was only my now-husband who would leave to go to work. I remember, Dec 2021, he caught covid, scuppering our plans for Christmas Day. I tested the same time as him, and I was covid negative 🤣 I'd had an infusion at the beginning of the month, so I was definitely immunocompromised! We both took tests to see when he would be fine to go back to work, and to see whether I'd caught it in the meantime 🤷♀️ nope! I'd only had 1 infection of covid in Feb 2021, and I wasn't ill, I just needed more sleep.
I like to tell hubby and our friends that my immune system is so overpowered that, when there's no infection to fight, it'll attack my myelin.
See the signature
Charlotte Hargreaves-Wright (he's also double barrelled his name so he can be "Wright" half the time)
Give your opinion
Survey
Survey
Members are also commenting on...
Articles to discover...
24/04/2024 | Testimonial
Multiple Sclerosis: “I am a warrior, and I will overcome this illness with love and positivity.”
17/11/2023 | Advice
21/09/2023 | Advice
19/05/2017 | Testimonial
23/03/2018 | News
13/06/2016 | News
02/10/2018 | Advice
Medication fact sheets - patient opinions...
Subscribe
You wish to be notified of new comments
Your subscription has been taken into account
Courtney_J
Community managerGood advisor
Hello dear members,
While the Coronavirus epidemic concerns many across the UK (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of cancer, as we all know that patients can be weakened by their treatments.
Have you had any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?
Take care,
Courtney