MS and the Coronavirus - How are you handling the pandemic?

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Courtney_J

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13/03/2020 at 12:36

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Courtney_J

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Hello dear members,

While the Coronavirus epidemic concerns many across the UK (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of cancer, as we all know that patients can be weakened by their treatments.

Have you had any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?

Take care,

Courtney

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stephanyJ

20/04/2020 at 15:12

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stephanyJ

Last activity on 15/12/2022 at 21:19

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Hello everyone, I hope you're all well. I haven't been on here in a while, but for those who don't know, my sister has MS and I'm on here to learn more about what she's going through so I can try to support her. We're both doing well considering. She's a bit frustrated that I do her shopping for her since she's shielding, I can never manage to remember the correct brands of things to buy emoticon confused She's been getting out into the garden a bit trying to soak in any sun and try to fend off the blues, but I think being cooped us is really starting to get to her a bit. emoticon crying

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-20 15:12:27

Daisybuster

21/04/2020 at 19:34

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Daisybuster

Last activity on 09/04/2025 at 09:16

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Hi Steph I no how you sister must be feeling, I’m feeling quite fed up to with being kept in to .and with having trouble getting shopping slots to. Take care x

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K.t

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-21 19:34:58

Fobelets

23/04/2020 at 11:24

Fobelets

Last activity on 27/04/2020 at 18:29

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@clarebear030574 HI , as I read your post it reminded me off my situation. I was diagnosed with MS in 2000. My Dad had stated years earlier that in his opinion I had MS since the early 1990's. I was in a relationship very much like yourself. I have 4 children, not that they are any help to me . I am 58yrs old. I just wanted to reassure you that circumstances can change , Now I am happily married so emotionally and practically things are a lot better.

Some people cannot cope with long term illness, either in themselves or others. I have no idea of your view on marriage. There is the very traditional vow including "in sickness and in health", which for some is all important. For others Western style serial monogamy is preferable. Just two differing viewpoints. To say find yourself may sound hollow, but coming to terms with a disease can allow one to re-invent oneself. MS is without a cure, so choices appear limited. Either feel "woe is me" or come out fighting. I still have bad days when the fight is lacking, but every day is a new day; like raising children there is no handbook. Plenty of advice, but choice of the route is down to you.

Welcome to the first day of the rest of your life, try the re-invention but if too hard today, then there is always tomorrow to try again.

Best wishes

Kim

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-23 11:24:26

Courtney_J

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24/04/2020 at 12:46

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Courtney_J

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Hello everyone, thank you for commenting and sharing your stories. It's wonderful to see our community so active and looking out for one another. How are you doing today? Is the isolation getting to you, or are you managing to stay positive? Please feel free to keep us all updated with how you are doing as the lockdown continues!

@Nathan76‍ @Desertflower‍ @Vixen10000‍ @Jomarian‍ @clarebear030574‍ @LindaBlacker‍ @brianbeecroft‍ @Carrie16‍ @Jolly1980‍ @Helenak‍ @Paula18‍ @Scottydog‍ @phonixmyth‍ @Daisybuster‍ @Kelly17‍ @Michelleywoo‍ @MSWarrior123‍ @Fobelets ‍ @stephanyJ‍ @Emma1024‍ @Zombieapplebaby‍ @Tilly68‍ @Bern50‍ @Meggie333‍

Take care,

Courtney

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MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-24 12:46:17

LindaBlacker

24/04/2020 at 17:08

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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Hi I started with ms in 1980 I was 24yrs old. Had a small daughter to care for. I didnt know what ms was. I was diagnosed with ms in 1991. Now I'm 63yrs d live alone. I. Dating an itallian guy hes really caring. Gets my shopping for me. The only difficulty is being apart. Keep safe all of you stay home x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-24 17:08:51

MSWarrior123

28/04/2020 at 15:24

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MSWarrior123

Last activity on 10/06/2025 at 21:45

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Hi Courtney_J,

Thank you for enquiring how I (and others) am, hope youre ok & keeping safe too.

Im doing ok, but I am slightly apprehensive as i am now in the additional 2 weeks that Im having to wait to get my tysabri infusion ..... as its gone from 4 weeks to 6 weeks. My initial MS started very aggressively so im on tenderhooks whether the 2 weeks will be the window where a relapse could occur.... im sure it wont and have been assured I should be fine..... but after 3 replases on the trot im kinda scared.... but I suppose its taking my mind of the coronavirus!!

Im managing... with staying up til late.... to get delivery slots so shopping sorted currently. Im working from home, but as I work as a support in classrooms my support role has had to alter. Prep'ing for return to sch and undertaking some online courses to keep my brain functioning!!

Life is different, but hey Im getting to spend quality time with my children and we are eating together, talking together and its nice. So my glass is half full, never half empty xx

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-28 15:24:37

LindaBlacker

28/04/2020 at 20:33

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LindaBlacker

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How longvely to hear your doing ok. It's good to know your getting your shopping sorted. Dont worry about you medication the neurologist knew what they are doing. Stay safe x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-28 20:33:30

LindaBlacker

07/05/2020 at 19:15

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LindaBlacker

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Hello everyone hope your all managing with this lockdown. It's not good but we will get through it as we handle ms. Take care x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-05-07 19:15:50

LindaBlacker

10/05/2020 at 18:56

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LindaBlacker

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Sarah may thankyou for your concern that's very sweet cheers xx

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-05-10 18:56:12

Courtney_J

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11/05/2020 at 15:27

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Courtney_J

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Hello everyone, I hope you're all doing well. If you haven't already seen, we recently published an article answering questions related to MS and the coronavirus. I think it may be of some help to you! I'll link it here:

Multiple Sclerosis and COVID-19

Let us know what you think about the article in the comments section at the bottom of the page!

Take care,

Courtney

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Courtney_J, Community Manager, Carenity UK

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-05-11 15:27:54

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