MS and the Coronavirus - How are you handling the pandemic?

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Courtney_J

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13/03/2020 at 12:36

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Courtney_J

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Hello dear members,

While the Coronavirus epidemic concerns many across the UK (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of cancer, as we all know that patients can be weakened by their treatments.

Have you had any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?

Take care,

Courtney

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LindaBlacker

12/05/2020 at 17:48

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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I've just been advised by someone on face book that we ms sufferers arent any more at risk than anyone else x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-05-12 17:48:59

Scottydog

13/05/2020 at 09:33

Scottydog

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I spoke to my nurse a couple of weeks ago

As i take fingolimod i asked her whats the risk of contracting coronavirus she read out the last blood test 3 months ago and apparently my lymphocyte count is just below a average healthy human being, so iam no more oat risk than a healthy person

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-05-13 09:33:20

LindaBlacker

13/05/2020 at 11:31

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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Hi scotty dog that is good news. We are a tough bunch us ms patients. Good luck xx

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-05-13 11:31:37

Courtney_J

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09/06/2020 at 12:03

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Courtney_J

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Good morning everyone,

How are you today? emoticon cute

How are you managing your MS now? Is it more complicated this time of year? Have you returned to a "normal life" after these few months of lockdown? Have you noticed any flares or changes in your MS post-lockdown? Have you ben able to reschedule or resume any appointments or treatments?

Feel free to share! We are all here to help each other!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-06-09 12:03:35

nameless

19/06/2020 at 16:07

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nameless

Last activity on 08/06/2023 at 11:50

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@Courtney_J I'm doing alright. I'm still pretty much staying at home as I'm nervous about going out with everyone and taking public transport and going to the shops. I just finished a significant flare, worse than any I've had in a while, I wonder if the stress contributed? Hope all are well.

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-06-19 16:07:20

LindaBlacker

23/06/2020 at 11:16

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I've not had a good experience love. Last wednesday I had a bad fall. I'd broken my hip. Not in a good situation with this virus in hospitals. Hopefully with this heat it will keep it at bay. Hope your all doing well and keeping safe and strong x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-06-23 11:16:56

Scottydog

24/06/2020 at 09:29

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Iam gd

Not worried about it personally, still up at 5 30 every morning, still doing things with the kids, on the plus side had a mri scan a week ago no new scars and disease is not active

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-06-24 09:29:59

Susiek

29/06/2020 at 17:07

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Susiek

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@LindaBlacker I hope you are doing okay I too have secondary progressive ms and live alone in the beginning i was struggling with food shopping but now get delivery's once a week my friend used to come over and put it away for me but not seeing her just now just speak to her on the phone these are scary times for everyone I'm just trying to stay positive and i have my routine to do hope you can too🌈

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-06-29 17:07:07

LindaBlacker

29/06/2020 at 17:36

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LindaBlacker

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Hi susie lovely to meet you. I do hope you keep well. Noticed nice havnt approved two drugs to help people with secondary ms. One slowed the decline. The other helped with mobility. Seems people with secondary ms are left out. Good luck x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-06-29 17:36:35

Courtney_J

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08/12/2020 at 12:18

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Courtney_J

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Hello everyone,

How are you holding up now that winter holidays are approaching? emoticon cute

Have you been able see your neurologist or other doctors? Have you thought about getting the COVID-19 vaccine if and when it becomes available to you? Do you know if MS patients will be able to get it?
@Toya911‍ @JoanJordan‍ @BenGuy‍ @Rolley5‍ @Avbye1‍ @Bookie‍ @KClews‍ @Dmarie67‍ @Shipley71‍ @Melfie‍ @Joooly‍ @Acceber‍ @Pangelina‍ @Jennibowles‍ @Jolly1980‍ @Fluffyman‍ @Rubytheareggienan‍ @Shazza‍

Feel free to share here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-12-08 12:18:02

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