Top 3 things that help you manage your MS

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Margarita_k

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19/07/2018 at 17:11

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Margarita_k

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Hello,

I propose each of you shares here the top 3 things that help you manage your disease. The things or people or actions without which you feel you couldn't cope.

Is it your treatment? Your physical activity? Your doctor? Your patient association's leader?

Any idea/experience is welcome!

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BShields

18/08/2018 at 09:25

BShields

Last activity on 08/02/2021 at 22:10

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Take stress out

Marijuana

sleep

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B Shields

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-08-18 09:25:55

JosephineO

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20/08/2018 at 10:14

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JosephineO

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Last activity on 15/07/2024 at 09:21

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@BShields Sleep is always a fantastic way to rejuvenate yourself. I love drinking a cup of chamomile tea before going to bed to help me relax.

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Josephine, Community Manager

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-08-20 10:14:34

Bagpuss66

27/08/2018 at 20:30

Bagpuss66

Last activity on 02/02/2025 at 11:16

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Talking about how am feeling to an expert is often helpful. And being open to new ideas.

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LizW

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-08-27 20:30:53

Bagpuss66

27/08/2018 at 20:31

Bagpuss66

Last activity on 02/02/2025 at 11:16

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And my neuro physio is very helpful

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LizW

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-08-27 20:31:58

JosephineO

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Edited on 26/09/2018 at 15:31

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JosephineO

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Yes, talking to others really helps. That's what Carenity is for too ;)

Do any other members have anything to add that helps them?

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Josephine, Community Manager

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-08-30 14:18:08

stutaylor

10/10/2018 at 07:59

stutaylor

Last activity on 03/11/2020 at 21:02

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I find it difficult to know when it’s time for me to stop and rest. Learning how to listen to your body is essential whether it is lower mood, slower thinking and movements, higher levels of anxiety and impatience. These signs are often ignored by myself and end up becoming worse.

However top 3 things for me;

No caffeine

moderate exercise

good pain killers the day after beta interferon injection

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-10-10 07:59:03

JosephineO

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10/10/2018 at 09:23

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JosephineO

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@stutaylor Hello, thanks for sharing this, I hope it helps someone else :)

A bit of moderate exercise is always good for the body and mind.

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Josephine, Community Manager

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-10-10 09:23:52

agnespaddy

22/10/2018 at 18:17

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agnespaddy

Last activity on 15/06/2022 at 20:43

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Having S.P. I have had to learn acceptance as to what I can or can't do. So listening to my body,not overdoing things and having support are the main things that help apart from pain killers that is lol.

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-10-22 18:17:33

Unregistered member

23/10/2018 at 13:46

Well done, keep up the good work and smiling

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-10-23 13:46:18

Pleasance

30/11/2018 at 17:18

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Pleasance

Last activity on 16/05/2023 at 11:23

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@iian22 @agnespaddy @stutaylor @Bagpuss66 My husband really helps me, it breaks my heart to slowly become more and more in his care but he never shows any annoyance. I am very lucky despite of my unluckiness :)

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Pleasance

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-11-30 17:18:28

Top 3 things that help you manage your MS

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