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Living with multiple sclerosis

Top 3 things that help you manage your MS

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avatar Margarita_k

Margarita_k

19/07/2018 at 17:11

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avatar Margarita_k

Margarita_k

Last activity on 07/10/2020 at 11:39

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1,195 comments posted | 88 in the Living with multiple sclerosis group

2 of their responses were helpful to members


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Hello,

I propose each of you shares here the top 3 things that help you manage your disease. The things or people or actions without which you feel you couldn't cope.

Is it your treatment? Your physical activity? Your doctor? Your patient association's leader?

Any idea/experience is welcome!

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Unregistered member

30/11/2018 at 17:32

Now going for my B12, but apart from the odd problems with my legs all going well. The best news is my new wetroom, it's a OMG thing 


Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-11-30 17:32:14

avatar Pleasance

Pleasance

07/12/2018 at 10:04

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avatar Pleasance

Pleasance

Last activity on 16/05/2023 at 11:23

Joined in 2014


63 comments posted | 29 in the Living with multiple sclerosis group


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@iian22 Was the wet room expensive? I woulf love to get one.

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Pleasance


Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-12-07 10:04:32
avatar exit

Unregistered member

08/12/2018 at 11:28

No Thanks to the BL, they paid the biggest part, but I think it would have been in the Reagen of about £10000, the company who done the job was The John Ford Group


Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-12-08 11:28:57

avatar Pleasance

Pleasance

11/12/2018 at 16:53

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avatar Pleasance

Pleasance

Last activity on 16/05/2023 at 11:23

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63 comments posted | 29 in the Living with multiple sclerosis group


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@iian22 Thank you very much for this information :)

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Pleasance


Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-12-11 16:53:54

avatar Sk8rGirl

Sk8rGirl

22/01/2019 at 17:09

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avatar Sk8rGirl

Sk8rGirl

Last activity on 02/01/2021 at 22:59

Joined in 2019


15 comments posted | 5 in the Living with multiple sclerosis group


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I’m new to this site. I live in the US.  I would love some ideas on how to deal with severe spascity. I take the Botox shits every 3 months. It controls the pain but doesn’t touch the spascity. Do you know if anything else that could help,


Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2019-01-22 17:09:55

avatar Pleasance

Pleasance

06/02/2019 at 14:43

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avatar Pleasance

Pleasance

Last activity on 16/05/2023 at 11:23

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63 comments posted | 29 in the Living with multiple sclerosis group


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@Sk8rGirl How severe is it? Do you currently have a helper? Is it in your arms?

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Pleasance


Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2019-02-06 14:43:59

avatar Bilbobags

Bilbobags

16/04/2019 at 10:26

avatar Bilbobags

Bilbobags

Last activity on 19/03/2026 at 17:26

Joined in 2015


7 comments posted | 3 in the Living with multiple sclerosis group


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@iian22 I too have one. Makes life so much easier. All the best. J

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JDB


Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2019-04-16 10:26:58
avatar exit

Unregistered member

16/04/2019 at 12:30

It's a much right now, but my wife miss the bath 


Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2019-04-16 12:30:06
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