NASH: How was your diagnosis experience? Did you get a plan of care? Prognosis?

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JosephineO

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Edited on 22/07/2019 at 11:36

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JosephineO

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989 comments posted | 7 in the Living with non-alcoholic fatty liver disease (NAFLD) and NASH group

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One of the main complaints of those diagnosed with Nonalcoholic fatty liver disease is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.

What has been your experience? Did you have a similar experience or did your doctor explain to you the condition? The plan of care?

Share your experience with others.

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JosephineO

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09/07/2019 at 11:03

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JosephineO

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989 comments posted | 7 in the Living with non-alcoholic fatty liver disease (NAFLD) and NASH group

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Hello,

Have you seen this discussion? Have you experienced similar issues? What was your experience of diagnosis? :)

@Groovychick‍ @Liam2863‍ @julania‍ @bonnie_gillies‍ @Willsterino‍ @Shelly_74‍ @Evamarie‍ @RoseofSharon‍ @Karenlg‍ @POORBOY‍ @Jeannieb12‍ @melody12‍ @StumpyDavies‍ @kaz40uk‍ @Southy1‍ @gwen300‍ @wendychick1‍ @Shazjaz‍ @Cazham30‍ @louj1989‍ @jmj1980‍ @Scottishlass1‍ @learidd‍ @Pammypoppins‍ @CharlieBbz‍ @mrshen‍

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Josephine, Community Manager

NASH: How was your diagnosis experience? Did you get a plan of care? Prognosis? https://www.carenity.co.uk/forum/other-discussions/living-with-nonalcoholic-steatohepatitis-nash/nash-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-2887 2019-07-09 11:03:29

Hello78

15/07/2019 at 11:48

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Hello78

Last activity on 26/06/2020 at 13:00

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14 comments posted | 1 in the Living with non-alcoholic fatty liver disease (NAFLD) and NASH group

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My doctor did explain it to me but I was a bit shocked and found that I learned a lot more on online. I felt better once I could gain knowledge myself and then go back to ask the doctor about it afterwards.

I follow diet plans from more online sources than my doctor, sometimes she seems too rushed to be able to spend quality time discussing the future.

Liam2863

25/07/2019 at 13:51

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Liam2863

Last activity on 06/07/2021 at 01:08

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70 comments posted | 10 in the Living with non-alcoholic fatty liver disease (NAFLD) and NASH group

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After Ultrasound, MRI with Contrast, Fibroscan and then a Liver Biopsy I was finally told I had Non Alcoholic Steato-hepatitis (NASH). My spouse was with me at the Consultation with the Liver Specialist and he was to the point and told me to get my Blood Sugars under control (being a Diabetic), loose some weight and eat plenty of Vegetables. Or it won't be too long before I end up on the Liver Transplant List!!! = Shocked is not the word I would say to describe how I felt at that time.

Lillymaddy

04/11/2019 at 13:20

Lillymaddy

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I was diagnosed by fibroscan Stage2 advanced. over 6 weeks ago. I was given no dietary advice or prognosis.
feel it’s a case of diet lose weight or die! That’s what it feels like

Michael_B

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19/11/2019 at 09:52

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Michael_B

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Last activity on 25/08/2020 at 17:48

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Hello @Lillymaddy‍ ,

Thanks for your message and welcome!

Hello Members,

I hope you don't mind me tagging you, but I was wondering if any of you could share your experiences with dietary advice or your prognosis regarding NASH? How are you doing now?

@Rocketdog‍ @Photocaz‍ @Tracyno1‍ ‍ @Susdon‍ @Liam2863‍ @Hello78‍ @Maggiecampbell‍ @Suz456‍ @Tortoise1330‍

Thanks everyone,

Michael

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Liam2863

Edited on 20/11/2019 at 00:53

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Liam2863

Last activity on 06/07/2021 at 01:08

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70 comments posted | 10 in the Living with non-alcoholic fatty liver disease (NAFLD) and NASH group

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Thanks @Michael_B‍

Hello @Lillymaddy‍ - What number was your Fibroscan result?

If I can help in any way?

William emoticon bashful

Ann63lw

03/12/2019 at 22:39

Ann63lw

Last activity on 19/12/2020 at 13:48

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I was told in 2016 I had non alcoholic fatty liver disease. I was told to do nothing it was not that bad. I have now had I show in my blood test and have been advised to loss weight and change diet. I have an appointment on 23rd dec with nutritionist.

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15/12/2019 at 23:00

@Ann63lw Hi I have just had diagnosis over the phone by doctor after an ultrasound. It was a wake up call so I've been eating alot more healthy foods and walking 2 miles a day. Lost 10lbs already. Just 4 stone to go.....

Ann63lw

16/12/2019 at 08:53

Ann63lw

Last activity on 19/12/2020 at 13:48

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Wow, that is great can you share what you eat please. I would be grateful off any advice I have stopped eating fatty foods and no butter, very little milk and lots of vegetables. Lost 2lb last week. Any advice would be welcome.

vivi1975

05/02/2020 at 11:38

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vivi1975

Last activity on 08/09/2020 at 12:37

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Hello, I'm new here and I'm in this situation. My GP hasn't explained the disease to me, even though I have asked questions. He simply told me to stop eating fatty foods and exercise more, not how to deal with the pain (other than anti-inflammatories) or about any alternative medicine.

If anyone knows about natural remedies or diets that can help, please let me know. Thank you in advance.

NASH: How was your diagnosis experience? Did you get a plan of care? Prognosis?

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