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How has your RA progressed? For how long have you had it?
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LizziB
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LizziB
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Last activity on 02/04/2024 at 00:46
Joined in 2022
280 comments posted | 7 in the Rheumatoid arthritis Forum
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Hi @rainbow768
How are you doing today?
Let me tag a few members who may be able to share their experience about how their rheumatoid arthritis progressed.
@Maxitwist @Abby34 @JulianneT @GG2019 @Sthembi12 @shelley.mck @PatsyMS @Heatheruk @Queen10 @Rosebud1967 @Tatjana @Laurajayne @Peeshe @Amberfloss @Deni1968 @cloud9 @Wsnixw @suemtalktalk.net @9366kathleen @Amanda23 @Kodimo @Trevor626 @GILL18 @Melmou123 @Joellie @Henderson1 @Diana55 @YorkshireJayne
How long have you had RA? Has it gotten worse? How so? What do you do to manage it?
Thanks in advance for sharing!
Take care,
Lizzi from the Carenity team
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Lizzi
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YorkshireJayne
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YorkshireJayne
Last activity on 09/09/2026 at 06:53
Joined in 2021
180 comments posted | 33 in the Rheumatoid arthritis Forum
62 of their responses were helpful to members
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@LizziB Yes it is slowly getting worse as I age. I was diagnosed at 27 and I take opioids for pain, no anti-inflamatory meds now because they caused stomach problems after taking them for 10 years. I keep active and use heat to help when the pain is too bad.
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Life is for living, do it, no matter what!
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Somya.P
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Somya.P
Last activity on 13/09/2026 at 02:43
Joined in 2023
1,115 comments posted | 22 in the Rheumatoid arthritis Forum
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Hi everyone,
I wanted to bring this discussion back because worrying about how rheumatoid arthritis might change over time can be difficult, both for people living with RA and for their loved ones. And because everyone's experience can be so different, hearing from people who have lived with RA for several years can be particularly reassuring and helpful.
@rainbow768, I hope your mom is doing well and that she's been able to find some reassurance since you first posted. @YorkshireJayne, thank you as well for sharing your experience of living with RA since your twenties. If you're both still around, we'd love to hear how things have been since then.
For everyone else living with RA:
- How long have you been living with rheumatoid arthritis, and how has it changed over the years?
- Have your symptoms, mobility, or ability to manage everyday activities changed since you were first diagnosed?
- What has helped you adapt as your RA has changed, whether that's treatment, staying active, pacing yourself, or something else?
@richie4arthritis @mrjohnj @Barbs21 @Quirkey247 @CynthiaEast @jowatkins @ZoeLara @grannypam @jet1504 @Mummymort @marydollathome @FMFRANKO @markne24 @trisha1952 @Marie17 @Turnertessah @landrover53 @Joanne higgins @Tomo1234 @Chrissie1564 @Cassie2048 @Nickie1 @mumof4boys @Foxy1974 @Keithwalker @MelodyK9 @indigomoon @valerie7787 @suem1946 @ImReallyAnElf @Junej6 @jimmar13 @zozziejr1 @Ruder1 @Ralphdaisy2016 @lizdivers @henrydeane @Mags04 @jools_warwick @MistyMoo @Rarebits @proudofthebrave @boodlekins46 @Pinkie @KPangela @lesjames @Helend @CreakynannyD @Rubyslippers @PatHarry @Ilovecats @bigbob11728 @Kearns @Caparti @Patwilkinson @Cartcraigskitty @Chris59 @Dinajm1983 @Deedenny @smiffy @Jackie607 @leaplumb @Kazzieb12 @PatriciaCarolan @Albeano71 @Annie65 @Wozeywifey @Claudiav @Hannie @TaraJ @Christinef @KieranHiggins @Kenneally @Donna122 @Chrisbo @Deanjem2 @Jill884 @TGMoore @Mark10 @Evostick71 @PaulSimcock @David130williams @iffyhump @Tina1982 @Jillg45 @Raythebaker @Kimbo45 @Lyndsaymorton @asmae96 @YorkshireJayne @Diana55 @Amanda23 @Sthembi12 @JulianneT @Benjiesmum @SP3RDN4 @Tonilou22 @MaryAn @ChrissieEDWARDS
Whether your RA has progressed, remained relatively stable, or gone through periods of flares and improvement, your experience could be valuable to someone who's worried about what the future might look like.
Take care,
Somya from the Carenity team 🌼
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Somya from the Carenity team 🌼
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YorkshireJayne
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YorkshireJayne
Last activity on 09/09/2026 at 06:53
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180 comments posted | 33 in the Rheumatoid arthritis Forum
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@Somya.P I have since been confirmed as HLA-B27 positive, changing my diagnosis to Ankylosing Spondylitis which fits better with the symptoms I have always had.
The flare ups are horrendous when they come, with debilitating pain in my hips, neck and back, which makes life hard, but...I refuse to give into it, it doesn't define me, I am still walking the dog we look after, going to the gym and doing "normal" everyday stuff.
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rainbow768
rainbow768
Last activity on 12/07/2023 at 14:24
Joined in 2023
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Hi guys. My mom has RA and she has been very anxious about it progressing lately. How has your RA progressed? For how long have you had it? Thank you.