What treatments have you tried for epilepsy? What works for you?

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Margarita_k

08/11/2017 at 11:21

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Margarita_k

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Hi everyone,

As you may already know, the goal of Carenity is to help you exchange experiences and opinions, to help each other manage your condition in a better way.

So in this discussion I invite you to share the treatment for eplilepsy that you have to take every day, to be able to compare your experiences with others and to learn more about treatments available.

Don't hesitate to give your opinion if it can help others!

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lesmal

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06/07/2021 at 10:52

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lesmal

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Last activity on 23/07/2025 at 19:38

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1,494 comments posted | 79 in the Treatments for epilepsy group

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@Sunshine5‍... I hope Briviact is working for you. My Neurologist has now taken me off Topiramate and put me on Zonisamide?

I've been on this only a month now and am still titrating dosages up every 2 weeks. Will see how it goes.

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Les

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2021-07-06 10:52:55

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lesmal

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07/11/2022 at 16:11

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lesmal

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Last activity on 23/07/2025 at 19:38

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@Sunshine5 ... I will be starting low dosage of Briviact soon. Any side effects to be aware of?

I hope you can advise.

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Les

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2022-11-07 16:11:17

Sunshine5

07/11/2022 at 16:20

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Sunshine5

Last activity on 18/06/2025 at 11:53

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@lesmal

I did not notice any side effects as such. I started on a low dose of 50mg twice daily, then 50am 75pm and gradually building up to 100mg twice daily. Taken since 2015. What are your seizures like? Mine are absences.

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syusuf

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2022-11-07 16:20:20

lesmal

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07/11/2022 at 16:27

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lesmal

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Last activity on 23/07/2025 at 19:38

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@Sunshine5 Focal seizures. Will be starting on 25mg once daily, then titrating up to 50mg twice daily. Have to do it in 8 week process. I hope this will work.

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Les

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2022-11-07 16:27:28

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Sunshine5

06/07/2021 at 12:00

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Sunshine5

Last activity on 18/06/2025 at 11:53

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Hi Lesmal, hope Zonisamide is helping you. I've tried that drug too but didn't make any difference to my seizures.

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syusuf

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2021-07-06 12:00:08

lesmal

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07/07/2021 at 15:45

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lesmal

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Last activity on 23/07/2025 at 19:38

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@Sunshine5‍... Thank you... Will keep you posted on progress. Stay well.

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Les

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2021-07-07 15:45:57

lesmal

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22/10/2022 at 12:19

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lesmal

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Last activity on 23/07/2025 at 19:38

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Am now on pregabalin and phenytoin but changing over to brivaracetam soon! This will be my 8th trial!

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Les

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2022-10-22 12:19:13

lesmal

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05/02/2023 at 14:57

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lesmal

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Last activity on 23/07/2025 at 19:38

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Update... I've been on Carbamazepine, Tegretol, Vimpat, Lamictal, Topiramate, Zonisamide, and am weaning off Briviact.

I'm still on pregabalin and phenytoin, but focal seizures are still not controlled.

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Les

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2023-02-05 14:57:55

What treatments have you tried for epilepsy? What works for you?

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