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Patients Epilepsy
What treatments have you tried for epilepsy? What works for you?
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SarahH
Hi I am taking epilim 500! no side effects for now. What can they be?
Unregistered member
I am on the same and am interested ..... also if there is bad interaction with other meds.
Faye88uj
Hey epilim was the first medication I was given and one side effect I experienced was weight gain. Very quickly. Hope your well.
Faye
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Faye N
BAZWHEAT
Good advisor
Hi, over the years I have been on phenabarbitone, epanutin, lamictal to control my epilepsy.
After 40 years, I have been found to have hydrocephalus and I have now had a shunt fitted.
Hopefully all will now be good, but I am staying on Lamictal so that I can continue to drive.
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bazwheat
Elleooo93
I take 200mg lamotrigine each day, luckily with no side effects. I was on Keppra(levetriceratam) prior to this which gave me lots of negative side effects in terms of my mental health.
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3.Harrison
lesmal
AmbassadorGood advisor
I take Carbamazepine (3 x 200mg. daily) and Phenytoin (2 x 100mg. daily). With all medication, we have side effects, tiredness, loss of memory and more.
Both medications control my seizures but its taken at least 30 years on the same medication to do so!
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Les
Courtney_J
Community managerGood advisor
Hello everyone,
How are you doing today? Have you seen this older discussion?
What treatments have you tried for your epilepsy? What has worked for you? Have you had to switch medications or treatments over the years? Have you had any side effects?
@Beth85 @Michelle4280 @Chantelle123 @Paulayog @Stefers100 @J9lorna @Ryley21 @Adminops155 @Cindylou @Silverwedding11 @Emma723 @Clare3kids @RachelHumph @peteracre @Jonboi67 @wendyathalifax @simmy786 @Epilepsy241982
Feel free to share your experiences and advice here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
BAZWHEAT
Good advisor
Hi, I have been taking Lamotrigine 25mg tablets times three, twice a day for a long time, and it seems to work well.
That is 150 every day.
Baz
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bazwheat
lesmal
AmbassadorGood advisor
Since my last post, I've changed medications and been on the following:-
Tegretol (Carbamazepine), Vimpat, Lamictal and now Topiramate, which have all been tried separately. I've remained on Phenytoin right through. I'm currently waiting for EEG results and will probably be weaning off Topiramate due to serious side effects.
Regret, at the moment I cannot find a compatible medication.
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Les
Sunshine5
Good advisor
I have been on multiple AEDs since birth. A few I can recall: Cabamazapine, Tegretol, Neurontin, Gabapentin, Lamotrigine, Pregabalin, Perampanal, Retigabine and lately: Clobazam(Frisium) since 2014, Epilim (Sodium Valproate) since 2007( cited as causing not only harm to pregnant women, but also "a contributory factor in male infertility ", I am one example), Briviact( Brivarecetam)since January 2018.
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syusuf
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Margarita_k
Community managerGood advisor
Hi everyone,
As you may already know, the goal of Carenity is to help you exchange experiences and opinions, to help each other manage your condition in a better way.
So in this discussion I invite you to share the treatment for eplilepsy that you have to take every day, to be able to compare your experiences with others and to learn more about treatments available.
Don't hesitate to give your opinion if it can help others!