Finding help for AS pain

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coskun

07/07/2020 at 20:23

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coskun

Last activity on 23/04/2025 at 10:36

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14 comments posted | 2 in the Living with ankylosing spondylitis group

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I have been having a lot of pain in my neck and also overall tiredness which is so constant. If I ever exercise my muscles start aching within 12 hours or less.

I do not have one single day in peace because of these aches and pain. I keep taking all kinds of pain killers but to no avail. Because of this constant pain in the neck, it gives me headaches too; like a vice is around my head. In the past, I had injections into the cervical part of the spine but it was unsuccessful. I take pregabalin 25 MLG and co-codamol, paracetamol, diazepam., losartan,...just fed up with myself really.

Now, I need to find somebody, some clinic to sort out my pain in the neck. I suppose I have bad wear and tear in my joints. I cannot bend down; if I do I get headache straight away. I m 80 his year and live alone in a council flat. I get no visitors and I have no friends or neighbors to be with at least sometimes. I just lead a lonely miserable existence,really. What's the point for being here, I keep saying to myself now and then. My GP is not very helpful despite his good intentions.

I live in Cambridge UK

I used to enjoy my weight training at the gym a YEAR AGO but now, I cannot lift any weight to tone my muscles as often as I would like to. The tinnitus in my left ear is also bad and I keep having difficulties keeping my balance up as I walk in the street. And I suppose all these medications are making me forgetful quite often. I think I have become a proper GAGA! The neck is just killing me right now as I type. Knees went too.

Now this Corona, there are no referrals by our doctors.

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Courtney_J

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08/07/2020 at 12:07

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,279 comments posted | 21 in the Living with ankylosing spondylitis group

11 of their responses were helpful to members

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@coskun Hello coskun, thank you for opening this discussion. I'm sorry to hear you're going through so much pain. Let me tag some members who can maybe share some advice with you.

Hello all, how are you today? How do you cope with your AS pain in the day-to-day? Do you find that your pain also causes headaches like it does for coskun? Have you sought out further help for your AS other than your GP? Do you have any advice to share?
@richard0804‍ @CynthiaC‍ @sASha!‍ @1976apache‍ @Coling‍ @Missy2‍ @eileengreen‍ @Joduell‍ @saxon49‍ @GloriaG‍ @Dollydymchurch‍ @Marmitesmum‍ @Scouserdog‍ @Bigpad‍ @SuziBloor‍ @DebiJP‍ @Catblonde‍ @Jenpat‍ @Suzief‍

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

Finding help for AS pain https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/severe-pain-in-the-neck-3567 2020-07-08 12:07:08

Bigpad

08/07/2020 at 12:16

Bigpad

Last activity on 21/07/2019 at 09:06

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4 comments posted | 4 in the Living with ankylosing spondylitis group

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Hi Courtney

Thank you for your email, my condition is very similar to Coskun with really bad headaches and neck pain, I no longer go for medical advice as I think it is not worth it. The pain is a 24 hour with little rest bite but it does not get me down

if any other member has advice it would be appreciated the only thing is I do not take medication as I have tried them all and none work also physio

regards

pat

Finding help for AS pain https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/severe-pain-in-the-neck-3567 2020-07-08 12:16:25

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08/07/2020 at 13:30

Hi @Coskun. I trust you are

@coskun‍ I trust you are as well as can be expected? I have suffered with A. S for many years now. I've spent a lot of time with my consultant and between us we have worked a regime that works for ME. My pain has been a pain in the past but with Naproxen, Tramadol and Gabapentin taken daily and Dulagutide taken weekly then to finish with Cosyntx monthly. I am virtually pain free most of the time. I do get the odd flare up about once in two months or so, then it's just 8 paracetamol daily until it subsides. THAT'S FOR ME.... Everyone is different the same doesn't work for all? Exercise and diet plays a big part in your treatment believe it or not.

Try different combination's until you find the best one for you. It will not be easy but keep at it, things will come right in the end.

I hope that my experience is of some help to you my friend.

All the best Richard. ?

Finding help for AS pain https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/severe-pain-in-the-neck-3567 2020-07-08 13:30:55

Bigpad

09/07/2020 at 09:32

Bigpad

Last activity on 21/07/2019 at 09:06

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4 comments posted | 4 in the Living with ankylosing spondylitis group

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Hi Coskun

thank you for your comments really appreciate it and will look into it

Hope you keep safe and well

pat

Finding help for AS pain https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/severe-pain-in-the-neck-3567 2020-07-09 09:32:00

Finding help for AS pain

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