Logo Carenity
Logo Carenity
Join now! Log in
flag en
flag fr flag es flag de flag it flag us
Home Forum Conditions Magazine Medications Surveys
Join now! Log in
  • Forum
  • Conditions
  • Magazine
  • Medications
  • Surveys
  • Home
  • Forums
  • General forums
  • Living with ankylosing spondylitis
  • Symptom diary?
 Back
Living with ankylosing spondylitis

Symptom diary?

  •  23 views
  •  0 support
  •  1 comment

avatar lawrenceJr

lawrenceJr

05/10/2017 at 12:16

avatar lawrenceJr

lawrenceJr

Last activity on 23/07/2020 at 15:32

Joined in 2017


9 comments posted | 9 in the Living with ankylosing spondylitis group


Rewards

  • Contributor

  • Explorer


 View profileView  Add a friendAdd  Write

Hi, I'm new to this forum. I think it's great that we can share our stories wih each other, it really does help to know you are not alone!

I was wondering if any of you are keeping a "symptom diary"? I was diganosed a month ago and my rheumatologist said I should keep a diary and note everything that makes my joints ache, or the pain worsen or go away, so as to learn more about the symptoms and triggers and all that and to undestand when it's AS and when it's not.

Follow

Other groups...

All things Christmas
Carenity News
Feedback for Carenity
Fun and games
Good to know
How to use Carenity
Let's talk about COVID-19
Life beyond illness
News from the media
Procedures and Paperwork
Youth patients with chronic conditions

Give your opinion

Survey

What do you think about the Carenity Forum and community?

All comments

avatar GloriaG

GloriaG

04/03/2018 at 09:28

Good advisor

avatar GloriaG

GloriaG

Last activity on 28/02/2023 at 00:50

Joined in 2018


107 comments posted | 47 in the Living with ankylosing spondylitis group

4 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Committed

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

Hello...I,m new too. I live in a remote area of Indonesia so I don't have access to medical people like most people do. I was finally diagnosed five years ago after getting the go around for 30 years. I do have a neurologist who I am in contact with often but nobody here seems to know much about AS. I have just about lost the use of my legs and my arms are giving me trouble too. I have ten vertebrae affected from cervical x 4, thoracic x 3 and lower lumber x 3...also spinal cord stenosis cervical. I fractured the lower lumber 3 and 4 30 years ago by being butted by a bull...So all the medicos I have seen over the years have said it is all because of that...until someone had the bright idea to do an MRI which confirmed AS...as did the blood test. I am just about worn out with all the pain and tiredness...I do take Tramadol and Diazepam for muscle spasms, Cipralex and Amlodipine for an enlarged heart which causes high BP. As an "ex" nurse for 40 years...I know the results of nerve pain and such....but I have to go it alone and need help. Any ideas please. G


Symptom diary? https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/symptom-diary-2004 2018-03-04 09:28:58

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Articles to discover...

The identity shift: How to build a life that includes, but isn’t defined by, illness

05/05/2025 | Advice

The identity shift: How to build a life that includes, but isn’t defined by, illness

Medications and driving: Are your prescriptions putting you at risk behind the wheel?

26/04/2025 | Advice

Medications and driving: Are your prescriptions putting you at risk behind the wheel?

Can journaling bring real benefits for chronic illness symptoms?

25/04/2025 | Advice

Can journaling bring real benefits for chronic illness symptoms?

Aspartame and its effects on our health

19/04/2025 | Nutrition

Aspartame and its effects on our health

NHS - Get help with prescription costs

12/11/2019 | Procedures & paperwork

NHS - Get help with prescription costs

Diclofenac to become a prescription drug

21/01/2015 | News

Diclofenac to become a prescription drug

Opioids Causing Concerns, Problems for Chronic Pain Patients

14/10/2016 | News

Opioids Causing Concerns, Problems for Chronic Pain Patients

Do you have the winter blues?

21/10/2014 | News

Do you have the winter blues?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

Your subscription has been taken into account

Join now! Log in

About

  • Who are we?
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookies management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag de flag es flag it flag us

The www.carenity.co.uk website does not constitute or replace professional medical advice.