Behcet's syndrome
Forum

Current topics:

• - Biotherapy and COVID-19: Has the virus had an impact on your treatment?
  Hello everyone How are you doing? Biotherapies (Enbrel, Humira, Remicade, Simponi...) are treatments that lead to a decline in immune responses (immunosuppressants).Patients who use these treatments a
• - Sarcoidosis
  hello my name is Tracey I'm 53 this month. In 2008 after a lot of tests etc I was diagnosed through a biopsy that I had sarcoidosis.  Long looking it up on good old Google as you can imagine I was sc
• - Cerebral Vasculitis
   I was diagnosed with "autoimmune disease" Cerebral Vasculitis ,in 2010 , treated initialy with intravenous cyclophosphamide and prednisilone, "developed a pulmonary Embolism, treated with warfarin f

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @Hyak

Current topics:

• - Telemedicine and COVID-19: What do you think?
  Hello everyone, How are you today? In recent months following the COVID-19 crisis, we've seen the NHS and health care industry turn more and more to telemedecine. Now, GPs and other health professi
• - COVID-19: How do you feel about the current guidelines in place?
  I am beyond words when you watch the news and see the amount of people not following guidelines and are not taking this seriously how do others feel? ☹️
• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay positi