Ongoing discussions - Behcet's syndrome
- Biotherapy and COVID-19: Has the virus had an impact on your treatment?
Hello everyone How are you doing? Biotherapies (Enbrel, Humira, Remicade, Simponi...) are treatments that lead to a decline in immune responses (immunosuppressants).Patients who use these treatments a
hello my name is Tracey I'm 53 this month. In 2008 after a lot of tests etc I was diagnosed through a biopsy that I had sarcoidosis. Long looking it up on good old Google as you can imagine I was sc
- Cerebral Vasculitis
I was diagnosed with "autoimmune disease" Cerebral Vasculitis ,in 2010 , treated initialy with intravenous cyclophosphamide and prednisilone, "developed a pulmonary Embolism, treated with warfarin f
- What is the most frustrating or difficult aspect of living with a rare disease?
Hello everyone, How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
- How were you diagnosed with a rare disease?
Hello everyone, How are you doing? What were the first symptoms you experienced? How were you diagnosed? @Hyakkimaru @Jo1977 @paul1798 @Alisondenise @Courtjack1 @gerdec2007 @Bazz