Forum
Behcet's syndrome

Current topics:

• - Biotherapy and COVID-19: Has the virus had an impact on your treatment?
  Hello everyone How are you doing? Biotherapies (Enbrel, Humira, Remicade, Simponi...) are treatments that lead to a decline in immune responses (immunosuppressants).Patients who use these treatments a
• - Sarcoidosis
  hello my name is Tracey I'm 53 this month. In 2008 after a lot of tests etc I was diagnosed through a biopsy that I had sarcoidosis.  Long looking it up on good old Google as you can imagine I was sc
• - Cerebral Vasculitis
   I was diagnosed with "autoimmune disease" Cerebral Vasculitis ,in 2010 , treated initialy with intravenous cyclophosphamide and prednisilone, "developed a pulmonary Embolism, treated with warfarin f

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? What were the first symptoms you experienced? How were you diagnosed? @Hyakkimaru‍ @Jo1977‍ @paul1798‍ @Alisondenise‍ @Courtjack1‍ @gerdec2007‍ @Bazz