Ongoing discussions - Cantrell pentalogy
- What is the most frustrating or difficult aspect of living with a rare disease?
Hello everyone, How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
- How were you diagnosed with a rare disease?
Hello everyone, How are you doing? What were the first symptoms you experienced? How were you diagnosed? @Hyakkimaru @Jo1977 @paul1798 @Alisondenise @Courtjack1 @gerdec2007 @Bazz