- Home
- Share
- Forum
- Fibromyalgia Forum
- Living with fibromyalgia
- Words to describe your fibromyalgia pain?
Patients Fibromyalgia
Words to describe your fibromyalgia pain?
- 40 views
- 3 times supported
- 5 comments
All comments
Michael_B
Community managerHello fellow members,
I was wondering if you had any thoughts on this topic? When you share your experiences it helps new members coming into the community better understand their condition. Anyone willing to give it go?
@Cruxxy @Amathyst @grandmasue58 @MartinHD5 @GLOJO1 @Loganlee @Abi147 @Sparkle2879 @Lynntrafford54 @andypandy20 @BasilsMum @Janmir18 @jool66 @Joss.jw @Lamblite @Debbie69 @Nanajacks36 @Lianne77 @GrandmaKaren @MarionPearce @Debbiehsaunders @Prettyangel @Zita71 @Kimberleyannday @paulaknights @Della1301 @Jontie68 @Marionscott
Cheers!
Michael
See the signature
Michael_B, Community Manager, Carenity UK
Jontie68
like someone has removed my batteries.
run over by a bus, then knocked down by mike tyson after running 2 marathons...
to learn to say no
to appreciate good days & creating memories
See the signature
Joanna xx
Michael_B
Community managerThanks for your vivid description @Jontie68
It must very hard to explain a disease that no one can see. And great point about knowing your limits and how to say no. Do you have any rituals to help you get through the bad days?
See the signature
Michael_B, Community Manager, Carenity UK
Courtney_J
Community managerHello everyone,
I thought I'd pop in to share our latest article about fibromyalgia!
We asked Carenity members to describe their experience with fibromyalgia and put their fibro pain into words: Fibromyalgia: Widespread, burning pain throughout the body
What do you think? Do their descriptions of fibromyalgia pain reflect your experience? How do you treat your fibro pain? With medicine or natural methods?
@Mattcat @Josozzy @Frustration @Suzy1243 @Wibblewobble @Suzanne37 @Triciajean @Nicnac2020 @JoannieP @Sarahbubbles @Calia160 @Carolinem @Ttotty @Cookie 321 @Smiler383 @gertyb @Rozanne
Feel free to share your thoughts and experiences here!
Take care,
Courtney
See the signature
Courtney_J, Community Manager, Carenity UK
Suzanne37
All consuming and unrelenting
Give your opinion
Survey
Members are also commenting on...
Articles to discover...

30/03/2022 | Testimonial
Fibromyalgia and degenerative disc disease: "I fight every day for my family!"

03/05/2019 | Testimonial
The testimonial of Natacha Waking up with fibromyalgia and non-disabling arthritis
Michael_B
Community managerAbout a year ago, the BBC produced a video featuring women who described their fibromyalgia symptoms in very colourful ways.
How would describe your symptoms? What's the best way you've found to help someone who's not living with the condition to understand what you're going through?
Are there any metaphors or expressions that you find particularly impactful?
Sincerely,
Michael from the Carenity Team