Topic of the discussion
Posted on 15/10/2019 18:04
About a year ago, the BBC produced a video featuring women who described their fibromyalgia symptoms in very colourful ways.
How would describe your symptoms? What's the best way you've found to help someone who's not living with the condition to understand what you're going through?
Are there any metaphors or expressions that you find particularly impactful?
Michael from the Carenity Team
Beginning of the discussion - 16/10/2019Words to describe your fibromyalgia pain? https://www.carenity.co.uk/forum/fibromyalgia/living-with-fibromyalgia/words-to-describe-your-fibromyalgia-pain-2944
Posted on 16/10/2019 16:47
Hello fellow members,
I was wondering if you had any thoughts on this topic? When you share your experiences it helps new members coming into the community better understand their condition. Anyone willing to give it go?
@Cruxxy @Amathyst @grandmasue58 @MartinHD5 @GLOJO1 @Loganlee @Abi147 @Sparkle2879 @Lynntrafford54 @andypandy20 @BasilsMum @Janmir18 @jool66 @Joss.jw @Lamblite @Debbie69 @Nanajacks36 @Lianne77 @GrandmaKaren @MarionPearce @Debbiehsaunders @Prettyangel @Zita71 @Kimberleyannday @paulaknights @Della1301 @Jontie68 @Marionscott
Posted on 17/10/2019 01:08
like someone has removed my batteries.
run over by a bus, then knocked down by mike tyson after running 2 marathons...
to learn to say no
to appreciate good days & creating memories
Posted on 17/10/2019 09:23
Thanks for your vivid description @Jontie68
It must very hard to explain a disease that no one can see. And great point about knowing your limits and how to say no. Do you have any rituals to help you get through the bad days?
Posted on 14/01/2021 12:59
I thought I'd pop in to share our latest article about fibromyalgia!
We asked Carenity members to describe their experience with fibromyalgia and put their fibro pain into words: Fibromyalgia: Widespread, burning pain throughout the body
What do you think? Do their descriptions of fibromyalgia pain reflect your experience? How do you treat your fibro pain? With medicine or natural methods?
@Mattcat @Josozzy @Frustration @Suzy1243 @Wibblewobble @Suzanne37 @Triciajean @Nicnac2020 @JoannieP @Sarahbubbles @Calia160 @Carolinem @Ttotty @Cookie 321 @Smiler383 @gertyb @Rozanne
Feel free to share your thoughts and experiences here!
Posted on 14/01/2021 13:16
All consuming and unrelenting