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Life with fibromyalgia
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mbourdelais
mbourdelais
Last activity on 14/11/2019 at 14:01
Joined in 2015
18 comments posted | 12 in the Living with fibromyalgia group
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Hi I'm Mo, I too suffer with Fibro and am in constant pain which seems to be getting worse with age. I do take meds but can't reallysay they work anymore. One minute I'm cold, the next sweating which is so bad that I'm dripping. My husband says my thermometer needs changing!!!
Don't know if I can help with anything but, drop me a line and maybe we can chat.
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Mbourdelais
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Hi I'm Sammi I'm so glad to hear that someone else who's body has probs controlling its temp I cant even wear a lot of make up anymore. I hate goin out anywhere as I think people are looking at me cause I'm sweating. The only answer I get from my docs is it could be my meds.Any help would be gratefully received x
TracyJ
TracyJ
Last activity on 21/04/2021 at 11:16
Joined in 2015
Hi I am New to the Group i am seeing a rheumatologist on the 5th May to hopefully have my fibromyalgia Confirmed i had a bad fall about 3 years ago since then i have been getting worse i am in constant pain i am under pain clinic i take 40mg of Morphine a day plus Gabapentin 300mg a Day they have taken me off Co-Cocodamol and changed me to paracetamol that are a waste of time. i was reading up the the symptoms of fibo and said to myself that is 100 percent me so went to my doctor she done the referral to see the rheumatologist to which iam very anxious about. I am Very depressed and down at the moment. i don't sleep i cant get out much due to my mobility and being in pain. I applied to get PIP I have My Medical Assessment on the 20th Of March i am very stressed about this as i don't no what to except. Thank You For Reading
jenfib
jenfib
Last activity on 12/08/2023 at 11:32
Joined in 2015
I have fibromyalgia I am taking vitaim B12 wich does help with brain fog
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Hi I'm sharron I'm new to this group my doctor told me this week that I have fibromyalgia , to be honest I'm a little scared as I've been told so many bad things about it , I have a little boy with Down syndrome and I'm scared that I won't be able to do the thing that I do for him, anyone got any advice for me please
mbourdelais
mbourdelais
Last activity on 14/11/2019 at 14:01
Joined in 2015
18 comments posted | 12 in the Living with fibromyalgia group
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Hi Sharron and welcome to this site. Please don't be scared of having Fibro, each person is different and it affects us all in different ways. The only advice I would give you it to take each day as it comes and get to know your limits. I know that is difficult with all that you do for your little boy, but if you do have any time to yourself make sure you rest. I hope your GP has put you on the correct medication but having said that, it may take a while for you to get the right one and be stable. Take care and look after yourself.
Mo
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Mbourdelais
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Thank you mo , I'm seeing the doctor again in a week and we are taking it from there , at the minute I just seem to want to sleep , but I will not give in
Cmad66
Cmad66
Last activity on 29/09/2024 at 16:47
Joined in 2015
5 comments posted | 2 in the Living with fibromyalgia group
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Hi my name is Christine I also have fibromyalgia and hypothyroidism have been getting sore more often recently on maxi tram 150mg I'm here if you want to talk . I'm from Coleraine in N. Ireland
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Cmad
elsbeth
elsbeth
Last activity on 22/06/2017 at 18:18
Joined in 2014
2 comments posted | 2 in the Living with fibromyalgia group
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Hey. I also have FM. I was diagnosed about 17 years ago. I take a variety of meds but they just mean I can get downstairs most of the time. I used to be heavily into fitness then this hit me. I can handle that but the main problem I have with it is how it has taken precious time away from myself and my children.
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It's not a fault its a feature.
pinkp70
pinkp70
Last activity on 17/03/2020 at 20:39
Joined in 2015
Hi..I'm looking for reassurance about my fibromyalgia..I moved house a week ago after weeks of packing and lifting boxes etc all with very little sleep..since moving in I am experiencing all over pain that feels like a bad 'toothache' but in the body plus I am cold most of the time the kind of deep bone coldness you get with flu and of course swaying on my feet with fatigue..is this a fibro flare or should I be worried?
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jenfib
jenfib
Last activity on 12/08/2023 at 11:32
Joined in 2015
3 comments posted | 3 in the Living with fibromyalgia group
Hi I have Fibromyaliga and would like to talk to people and help if I can with any thing about fibromyaliga