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Patients Fibromyalgia

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Carenity Member
Posted on

Hi everyone was just wondering what type of Pain Patches  are the best for helping  Fibromyalgia Pain. I have just been taken off the Butrans Patches because I have been on them now for about 7 years and I don't think they are helping me much anymore. So now the Pain  Management Doctors are putting me on Fentanyl Patches after I have come off the Butrans for 5 days. Well today is my 4th day and I have been in Agony. I can start the Fentanyl this  Wednesday,  but I'm a bit worried about it because ive read some of the reviews and some of them are not good.It also said you're not to take them if you have  COPD and Asthma, well i have both. But I desperately need some Pain  Medication because the pain i am in is driving me mad. Don't know what to do with myself. Can anyone give me a bit of Advice please about Fentanyl. Thanks so much everyone. Wishing you all good health,it's worth more than any amount of money or anything else, except LOVE πŸ™„.Glojo 

Beginning of the discussion - 04/09/2019

Fentanyl Patches for Fibromyalgia I h
1

Carenity Member
Posted on

Hi everyone, can any of our members please tell me how long it takes for Fentanyl Patches to work. I only started on them today but I feel so very ill. Pain is worse, so giddy, nausea, tummy cramps, just can't think straight.also breathing issues..Thanks to everyone .Hope you are not in too much pain today. Take Care. Glojo πŸ€”.

Fentanyl Patches for Fibromyalgia I h
Carenity Member β€’ Community manager
Posted on

@Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ hello, do you know about these pain patches? Have you ever tried them? Do you use other drugs that are useful? Please share your experience to help @Hidden username‍! Have a lovey day

Fentanyl Patches for Fibromyalgia I h
Carenity Member
Posted on

Hi ya I did try them patches but oh my I felt the same has you but my face and hands starting tingling and swelling too so I had to take patch off I had it on 3 days I was feeling dizzy , sick  and so much pain and my aniexty got worst my friend even said to me that one side of my face looked swallon I said I can feel it tingling so I took it off scared me but anyways I went to doctor told him he said I allergic to the patches so can’t use them now see how you go if you feel worse go back to GP and if you start to swell please just take the patch off xx

Fentanyl Patches for Fibromyalgia I h
Carenity Member
Posted on

I have never used any kind of patch, I am on a cocktail of many drugs to try and keep my pain under control. I take 300mg of Pregabalin morning and night, with 50mg of Amiltryptaline and 45mg of Mirtazapine at night. I am also on Metformin for type 2 Diabetes and I have been hearing lately that they are trialing this for FMS. I also have co-codamol and Naproxen for flares or break through pain. Oh, I also use Omeprazole for acid reflux which is common with FMS too.

Fentanyl Patches for Fibromyalgia I h
Carenity Member
Posted on

I have not used the Fentanyl patch. LDN (www.lowdosenaltrexone.org) is much safer and is quite effective.in most cases. Edmond

Fentanyl Patches for Fibromyalgia I h
Carenity Member
Posted on
Good advisor

I have used Butrans (too weak) and been on fentanyl pain patches 10 years. I cannot physically walk without them as they are so good for pain. it was a blessing to stop oral medications that ripped my stomach to shreds. I would not be able to function without them. 

I have fibromyalgia ME osteoarthritis and other minor illnesses as carpal tunnel and chronic vertigo. 

No side effects and work almost immediately. 

I use 25mg patch duogesic fentanyl.

Fentanyl Patches for Fibromyalgia I h
Carenity Member
Posted on

Hi, could you please tell me how long it was before the Fentanyl Patches started to work for you. I was on Butrans Patches for 7 years, then wasn't getting any pain relief from them .Have been on the Fentanyl Patches now for nearly 3 weeks and I feel so very I'll Much ,worse than when I was on the Butrans Patches .I am also taking Pregablin and  Paracetamol for pain. But nothing seems to be helping me. I take quite a lot of medication because I have a heart and lung problem, also Rheumatoid Arthritis, Osteoarthritis  Osteoporosis, Diverticulitis etc  in fact quite a few health issues  but this  Fibromyalgia have just about finished me off with one thing and another. Thanks for listening. Hope you can help me out here πŸ€”.Glojo 

Fentanyl Patches for Fibromyalgia I h
Carenity Member
Posted on

@Hidden username I have never been offered no pain patches only Tramadol which are not doing anything except giving me constipation.. Infact since I’ve been diagnosed in 2015 nobody Gp or health professionals have asked me how I am , I seemed to be totally neglected!  Is this the normal treatment in the UK πŸ‡¬πŸ‡§ are we still not excepting that FB is a life changing illness !!

Fentanyl Patches for Fibromyalgia I h
Carenity Member
Posted on
Good advisor

@Hidden username hi I would not blame the fentanyl patches I would question the pregablin which is an antipsychotic drug and the side effects are awful = vertigo n pounding head n feeling if terrible imbalance n weakness like being drunk Plus they are little use at all for fibro or it's sister condition myalgic encephalomyalitis (ME) Yes docs are tolf to use it but I know hundreds of people via groups online who find it not only useless but awful.

Paracetamol for long use will really hurt your stomach especially if you already have stomach or bowel issues 

Fentanyl patches at the correct dose work in about half an hour. 

Sorry your feeling so bad but i would seriously think about stopping any oral pain meds