Ongoing discussions - Glucose-6-phosphatase deficiency
- What is the most frustrating or difficult aspect of living with a rare disease?
Hello everyone, How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
- How were you diagnosed with a rare disease?
Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @Hyak
- Coronavirus (COVID-19) - information and precautions
Hello dear members, I thought I would open this discussion as the Coronavirus (COVID-19) has been a strong news topic of late and is a pertinent topic for us here, as those with chronic health conditi
- Is a third wave of COVID-19 inevitable?
Hello everyone, How are you today? Many of us in the UK want to turn the page and join together as a family to celebrate the festive season. But it's important that we not lose sight of what we a
- COVID-19 vaccine: What do you think?
Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany) announced on Monday 9 November that their vaccine candidate is 90% "effective" in preventing Covid-