Ongoing discussions - Cold Agglutinin Disease
- How were you diagnosed with a rare disease?
Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! For some it can be a long, arduous process, and for others it can go quickly
- Living with Usher syndrome: Share your experience!
Hello, am new here. I have usher syndrome and have been registered blind for quite a few years. Also have glaucoma which has closed down one eye and affected central vision in other eye. I manage q