Leukocyte adhesion deficiency
Forum

Current topics:

• - Biotherapy and COVID-19: Has the virus had an impact on your treatment?
  Hello everyone How are you doing? Biotherapies (Enbrel, Humira, Remicade, Simponi...) are treatments that lead to a decline in immune responses (immunosuppressants).Patients who use these treatments a
• - Sarcoidosis
  hello my name is Tracey I'm 53 this month. In 2008 after a lot of tests etc I was diagnosed through a biopsy that I had sarcoidosis.  Long looking it up on good old Google as you can imagine I was sc
• - Cerebral Vasculitis
   I was diagnosed with "autoimmune disease" Cerebral Vasculitis ,in 2010 , treated initialy with intravenous cyclophosphamide and prednisilone, "developed a pulmonary Embolism, treated with warfarin f

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @Hyak

Current topics:

• - Coronavirus (COVID-19) - information and precautions
  Hello dear members, I thought I would open this discussion as the Coronavirus (COVID-19) has been a strong news topic of late and is a pertinent topic for us here, as those with chronic health conditi
• - Telemedicine and COVID-19: What do you think?
  Hello everyone, How are you today? In recent months following the COVID-19 crisis, we've seen the NHS and health care industry turn more and more to telemedecine. Now, GPs and other health professi
• - Are you going to continue to wear a face mask after you've had both vaccine jabs?
  I've been thinking about this since I had my first jab 3 weeks ago. I see many advantages in continuing to wear a face mask ~LESS pollution, less bugs leading to chest and other infections, lowering