What is your myasthenia gravis (MG) story? Let's share!

Hello all,

How are you doing? Have you seen our myasthenia community here? 😊

Don't hesitate to share your story, your questions, concerns, or anything else about life with myasthenia gravis! @buddy1223@Hannahlaidi@markcas2001@Disemaryk@Olivia45@theowilson@SNA_10@camuk1@Lilly @RobVen@AlmostFrench@Sarah999@Eve134@chezza2409@Heathergem@Geraldine4459@Darukswoman @silson@Lindybee

Take care,

Courtney 

@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.

Hi, my name is Lily, I'm new to this forum, and new to the disease, actually. I came here in search of advice and encouragement. I've been recetly diagnosed with myaasthenia, and I still can't get used to the idea, it scares me. I've never heard of the disease before! And now I have to learn to deal with it on a daily basis.. I find it hard to get used to the fact that I am ill. How did you manage to accept the fact and just move on?

Hi, my husband was diagnosed with Myasthenia Gravis 4 years. Diagnosis was fast he had ptosis(droopy eye) went to the doctor and he was sent to the eye casualty. By evening that day he was diagnosed.
I have lupus(SLE)and many other conditions I developed double vision 2 years ago, with covid and us shielding nothing much was done to sort me out. I have also had swallowing/choking problems.I have lots of other problems but with so many conditions it’s hard to know which is which , I also have macular degeneration and had to go to optician as I had sudden deterioration in my sight. She sent me urgently to see two opthalmic doctors. I saw an optometrist who said “it’s leaning towards myasthenia gravis. It may not be but I don’t know what else it could be.