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  • Living with ankylosing spondylitis
  • Are you satisfied with the care you've received for AS?
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Living with ankylosing spondylitis

Are you satisfied with the care you've received for AS?

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avatar CaryHutton

CaryHutton

09/02/2022 at 23:58

avatar CaryHutton

CaryHutton

Last activity on 28/02/2022 at 09:59

Joined in 2022


3 comments posted | 3 in the Living with ankylosing spondylitis group


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I've finally officially been diagnosed with ankylosing spondylitis after years of fighting with my GP and the NHS. Is it just me, or have I just been unlucky with the doctors that have dealt with my case? I would be interested if anyone else had had the same so-called treatment as I have..

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avatar Courtney_J

Courtney_J

Community manager
10/02/2022 at 18:40

Good advisor

avatar Courtney_J

Courtney_J

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Last activity on 13/10/2022 at 16:47

Joined in 2020


1,279 comments posted | 21 in the Living with ankylosing spondylitis group

11 of their responses were helpful to members


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Hello @CaryHutton, thank you for sharing with us. I know it can be frustrating when you don't feel like you've been listened to or that you've received adequate care.

For our other members, what do you think of the treatment you've received for your AS? Did it take a long time to get your diagnosis? Do you feel like your doctors listen to your questions and concerns? Did you have any say in the choice of treatment?

@Wafaa.elhoucini @WhiteWolf @BakuBunny @richard0804 @Jason1 @thedavid @sASha! @CynthiaC @liamjcross @1976apache @Coling @Missy2 @danjoshaw60 @eileengreen @saxon49 @Joduell @Moke772162 @Catblonde

Take care,

Courtney

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Courtney_J, Community Manager, Carenity UK


Are you satisfied with the care you've received for AS? https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/dealing-with-doctors-for-as-4525 2022-02-10 18:40:46
avatar exit

Unregistered member

21/02/2022 at 14:40

Hello @CaryHutton I must class myself as very, very lucky to have had the very best of care imaginable. My Consultant at the Royal Hospital for Rhumatic Diseases in Bath, Bath and North East Somerset, Raj Sengupta has involved me in any and all treatments over the last 17 years.

I am so sorry to hear of your experiences, you should be able to ask your consultant to keep you in the loop regarding your treatments.

Wishing you Good Luck @ richard0804


Are you satisfied with the care you've received for AS? https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/dealing-with-doctors-for-as-4525 2022-02-21 14:40:09

avatar GloriaG

GloriaG

04/03/2022 at 03:34

Good advisor

avatar GloriaG

GloriaG

Last activity on 28/02/2023 at 00:50

Joined in 2018


107 comments posted | 47 in the Living with ankylosing spondylitis group

4 of their responses were helpful to members


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You are lucky to have a specialist not too far away. Here it is a four hour drive there and back again through mountainous roads, which is agonizing for me. Count your lucky stars. G


Are you satisfied with the care you've received for AS? https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/dealing-with-doctors-for-as-4525 2022-03-04 03:34:50

avatar Ankyloo

Ankyloo

04/03/2022 at 10:53

Good advisor

avatar Ankyloo

Ankyloo

Last activity on 17/03/2022 at 10:26

Joined in 2015


30 comments posted | 22 in the Living with ankylosing spondylitis group


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@CaryHutton I had trouble getting a referral and then getting an appointment. But I got there in the end and my doctor's wonderful with me. Sometimes it can be an uphill battle I'm afraid.


Are you satisfied with the care you've received for AS? https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/dealing-with-doctors-for-as-4525 2022-03-04 10:53:26

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