What is the most difficult or frustrating aspect of your MS in your daily life?

259 views
10 times supported
21 comments

JosephineO

Community manager

19/09/2018 at 17:55

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 44 in the Living with multiple sclerosis group

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

Hello everyone,

Adjusting to life after being diagnosed with MS can be very difficult. It requires becoming more aware of the limitations that your body will experience and the lifestyle changes that these changes will force upon you. These adjustments focus around every aspect of life; from basic mobility to how it impacted upon your relationship with friends and families. The nuanced list goes on...but I would like to hear about your personal experiences.

Which aspect of your MS do you find the most difficult? What do you miss the most about your life pre-MS? Please don't hesitate to share your experiences and feelings as this will help other members too

All comments

Go to the last comment

LindaBlacker

30/09/2020 at 17:23

Good advisor

LindaBlacker

Last activity on 18/12/2024 at 18:32

Joined in 2020

180 comments posted | 71 in the Living with multiple sclerosis group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

My husband walked out leaving me after a 26yr marriage. I ended up going on a dating site. Some guys were very cruel about the fact that I had ms. Then last january I met a guy we instantly clicked. We will marry sometime next yr.

What is the most difficult or frustrating aspect of your MS in your daily life? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-do-you-find-the-most-difficult-aspect-with-your-ms-2558 2020-09-30 17:23:30

Daisybuster

07/10/2020 at 09:36

Good advisor

Daisybuster

Last activity on 09/04/2025 at 09:16

Joined in 2017

22 comments posted | 11 in the Living with multiple sclerosis group

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@JosephineO loss of independence is not nice, and finding I can’t do what I use to be able to do is hard to except x

See the signature

K.t

LindaBlacker

07/10/2020 at 11:56

Good advisor

LindaBlacker

Last activity on 18/12/2024 at 18:32

Joined in 2020

180 comments posted | 71 in the Living with multiple sclerosis group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

I'd love to be independent it's so hard relying on someone else. That's so hard to bear x

Charlie12345

17/10/2020 at 13:02

Charlie12345

Last activity on 19/03/2021 at 14:12

Joined in 2020

1 comment posted | 1 in the Living with multiple sclerosis group

Rewards

Explorer

View profileView Add a friendAdd Write

Hi I'm new here, I'm finding it hard to ask for him as always done everything, it's just me and my son 10 he is a great help, I'm use to helping other people but really struggle I was diagnosed last November after I clasped in my caring job, had to give it up, now I feel alone,

LindaBlacker

26/10/2020 at 06:45

Good advisor

LindaBlacker

Last activity on 18/12/2024 at 18:32

Joined in 2020

180 comments posted | 71 in the Living with multiple sclerosis group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

Charlie 12345 please dont feel alone your amoung friends. Your never alone love. Talk about your feelings to a dr. We are a great bunch of people really. I've had ms forty yrs. I started at 24yrs old. Had a baby to care for. It's made me a more compassionate person. Chin up honey we are right behind you xx

Daisybuster

27/10/2020 at 12:12

Good advisor

Daisybuster

Last activity on 09/04/2025 at 09:16

Joined in 2017

22 comments posted | 11 in the Living with multiple sclerosis group

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@Charlie12345 please don’t feel alone come on here and chat or look around x

See the signature

K.t

Miss.MS

29/10/2020 at 15:56

Miss.MS

Last activity on 29/10/2020 at 15:41

Joined in 2020

6 comments posted | 6 in the Living with multiple sclerosis group

Rewards

Explorer

View profileView Add a friendAdd Write

@Charlie12345 Yes do know you're not alone. I think many of us can relate to what you've been through and what you're feeling. I know how hard it is to slowly see the roles reverse, from carer to "caree" so to speak. Stay strong!

LindaBlacker

26/11/2020 at 12:33

Good advisor

LindaBlacker

Last activity on 18/12/2024 at 18:32

Joined in 2020

180 comments posted | 71 in the Living with multiple sclerosis group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

Charlie please dont ever feel alone. Your amount friends that understand your situation exactly. Cheers babe x

LindaBlacker

17/02/2021 at 17:07

Good advisor

LindaBlacker

Last activity on 18/12/2024 at 18:32

Joined in 2020

180 comments posted | 71 in the Living with multiple sclerosis group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

Charlie 12345 your never alone. Your amount friends. Yes we all get frustrated.but push yourself love

Courtney_J

Community manager

27/10/2021 at 16:10

Good advisor

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,279 comments posted | 58 in the Living with multiple sclerosis group

11 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Hello all,

How are you today? I thought I would revive this discussion, as it can be interesting to share how we all have different or similar experiences of MS.

What about you? What aspect of your MS do you find the most challenging in the day-to-day?
@Narcisse‍ @waggywoo1‍ @billyjon‍ @Priya1988‍ @Caz1979‍ @nazza91‍ @Iannoh‍ @Luke3341‍ @Rach115‍ @NicolaS‍ @JoLynn‍ @Leicester-City-Fan‍ @niamhobroin2021‍ @Franran3‍ @Byojaxs‍ @alexab‍ @AnneLH‍ @Trumpmercy‍ @NaClearth‍

Take care,
Courtney

See the signature

Courtney_J, Community Manager, Carenity UK

What is the most difficult or frustrating aspect of your MS in your daily life?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

How do you use Carenity? Share your experience!

Articles to discover...