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  • What is the most difficult or frustrating aspect of your MS in your daily life?
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Living with multiple sclerosis

What is the most difficult or frustrating aspect of your MS in your daily life?

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avatar JosephineO

JosephineO

Community manager
19/09/2018 at 17:55

Good advisor

avatar JosephineO

JosephineO

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Last activity on 15/07/2024 at 09:21

Joined in 2018


989 comments posted | 44 in the Living with multiple sclerosis group

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Hello everyone,

Adjusting to life after being diagnosed with MS can be very difficult. It requires becoming more aware of the limitations that your body will experience and the lifestyle changes that these changes will force upon you. These adjustments focus around every aspect of life; from basic mobility to how it impacted upon your relationship with friends and families. The nuanced list goes on...but I would like to hear about your personal experiences.

Which aspect of your MS do you find the most difficult? What do you miss the most about your life pre-MS? Please don't hesitate to share your experiences and feelings as this will help other members too

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avatar alexab

alexab

27/10/2021 at 16:30

avatar alexab

alexab

Last activity on 13/06/2025 at 18:41

Joined in 2021


1 comment posted | 1 in the Living with multiple sclerosis group


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Everything!  Turning from the active, energetic and busy individual into a useless, tired and restless corpse!  Frequently getting exhausted, relying on my friends' and neighbours' help, being trapped in a lousy body, so on and on and on!  I miss my walks, photography sessions as both, hands and legs have given up on me!  I lost my independence, have to beg friends to assist and run various errands.  I want my life back.  I want to go shopping, walking, dancing, travelling and enjoy simple aspects of life.  MS is such a cruel, debilitating and horrible monster!  I hate it so much!


What is the most difficult or frustrating aspect of your MS in your daily life? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-do-you-find-the-most-difficult-aspect-with-your-ms-2558 2021-10-27 16:30:10
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