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  • How long have you had RA? What's your RA story?
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Living with rheumatoid arthritis

How long have you had RA? What's your RA story?

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avatar Margarita_k

Margarita_k

08/12/2017 at 12:02

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avatar Margarita_k

Margarita_k

Last activity on 07/10/2020 at 11:39

Joined in 2016


1,195 comments posted | 50 in the Living with rheumatoid arthritis group

2 of their responses were helpful to members


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Hi everyone!

Rheumatoid arthritis is an autoimmune disease, and its symptoms can appear at a very early age, but it is usually diagnosed in adults of 30-50 years old.

In your case, how long have you had RA? At what age were you diagnosed? I invite you to compare your experiences.

To go further in this discussion, I suggest you talk about what has changed in terms of patient care, treatment choice and other, since you were diagnosed with RA.

Have you had a lot of information about the disease? Have you been following the news about the progress of medical research in the field of RA and other auto-immune diseases?

How has your treatment plan changed over years? And what about public awareness of the disease?

I think sharing your opinions on this topic can help us learn something more about the condition and take an look at the evolution of patient care from a different angle.

Thank you all!

Margarita

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avatar Ldawnn

Ldawnn

20/02/2018 at 23:30

avatar Ldawnn

Ldawnn

Last activity on 02/06/2022 at 13:33

Joined in 2018


1 comment posted | 1 in the Living with rheumatoid arthritis group


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I was diagnosed about 4 years ago had been going to my doctor on and off for a few years (3) before that with pain in my joints then 4 years ago I got my diagnosis, In march last year i was also diagnosed with Lupus and have been going to and from the hospital every 3 months to try and find a medication that will help with the pain aswell as the lupus it's been a very hard year and few months. I have had to step down in my job as a senior care assistant doing 44hours  a week to doing administration 3 days and only working 16hours a week, I am now on a medication called methotrexate and folic acid to try and help with my lupus and co-codamal for pain. Is there anything else I should be doing to help myself.

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Dawnn j Lunn


How long have you had RA? What's your RA story? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/how-long-have-you-had-ra-2092 2018-02-20 23:30:58
avatar exit

Unregistered member

24/02/2018 at 17:20

I was diagnosed back in 2013 when i was 45. Came right out of the blue. Had a shower one night. Sat watching some T.V. then BANG I got the most horrible pain in my left hand. I couldn't do anything. It did subside over the next few hours and eventually went away. Three or four days later the same thing happened in my right hand.  I then began to loose weight and become constantly tried .5 visits to my G.P. and I was finally referred to Rheumatologist. The rest, as they say, is history. My R.A. is fairly well managed at the moment but my fatigue has never really gone away complely. It could be worse. I still manage to hold down a full time job and will carry on doing so for as long as possible.🙂

 

 


How long have you had RA? What's your RA story? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/how-long-have-you-had-ra-2092 2018-02-24 17:20:32

avatar Jane52

Jane52

25/02/2018 at 17:33

avatar Jane52

Jane52

Last activity on 18/07/2020 at 09:37

Joined in 2018


1 comment posted | 1 in the Living with rheumatoid arthritis group


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Have just been diagnosed with RA not sure what to expect 


How long have you had RA? What's your RA story? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/how-long-have-you-had-ra-2092 2018-02-25 17:33:53
avatar exit

Unregistered member

25/02/2018 at 20:24

I’m 54 and I was diagnosed when I was 45. I only had a pain in my thumb which wouldn’t shift and my left hand kept swelling up. It’s taken me many years to come to terms with this diagnosis. I now suffer with my hands wrists (one of them now held together with a metal plate) hip, knees and feet. I’ve tried many treatments but finally I think we’ve got it right. I’ve been off meds for a few months due to recurring tonsillitis. I’m 6 weeks post op having had them taken out and hoping to be back on meds soon.


How long have you had RA? What's your RA story? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/how-long-have-you-had-ra-2092 2018-02-25 20:24:43

avatar Jill884

Jill884

07/03/2018 at 10:51

avatar Jill884

Jill884

Last activity on 04/05/2026 at 07:37

Joined in 2018


10 comments posted | 6 in the Living with rheumatoid arthritis group


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I was diagnosed when I was 16 years old after suffering for two years, that was 43 years ago, named as Juvenile RA. I now can not work giving up my job in December 2017. Fatigue & crippling pain in my right hip means I'm on crutches so getting around is difficult & not earning any money even more difficult. 

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Jill Bentley


How long have you had RA? What's your RA story? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/how-long-have-you-had-ra-2092 2018-03-07 10:51:25
avatar exit

Unregistered member

08/03/2018 at 01:10

Diagnosed officially in 2005 at 28 after suffering since my teens.


How long have you had RA? What's your RA story? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/how-long-have-you-had-ra-2092 2018-03-08 01:10:37

avatar Courtney_J

Courtney_J

Community manager
21/09/2020 at 15:02

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avatar Courtney_J

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020


1,279 comments posted | 24 in the Living with rheumatoid arthritis group

12 of their responses were helpful to members


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Hi everyone,

I thought I would revive this older discussion so we can get to know one another better in our RA community! emoticon cute

So, what's your RA story? How long have you had it? Did it take a long time for you to get a diagnosis? How are you doing today?
@Rafa76‍ @Juliana‍ @EmmyJane‍ @Layton‍ @lizshi‍ @noelynn‍ @JRL1965‍ @dilizjo‍ @MarkOrton‍ @Un4getablefox‍ @Dolphin5005‍ @Henrietta1‍ @Physio_Suzie‍ @RoMatt‍ @Cherie1958‍ @holdaway‍ @Lala68‍ @Porky55‍ 

Feel free to share your stories and discuss with one another below!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK


How long have you had RA? What's your RA story? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/how-long-have-you-had-ra-2092 2020-09-21 15:02:58
avatar exit

Unregistered member

16/12/2020 at 23:55

 hi everybody, just been diagnosed today after 3 years of tests,procedurs came as a bit of a shock,i never considered it,even though my mother has had it for 53 years.thanks


How long have you had RA? What's your RA story? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/how-long-have-you-had-ra-2092 2020-12-16 23:55:04

avatar PollyP

PollyP

02/02/2022 at 14:24

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avatar PollyP

PollyP

Last activity on 01/02/2023 at 10:06

Joined in 2016


12 comments posted | 11 in the Living with rheumatoid arthritis group


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I was diagnosed about 10 years ago now. I know my gran had arthritis in her hands when I was a little girl, I don't think she was every really treated for it and I wonder now if it was RA. My RA is well managed now, it's other things in my life and conditions that need more attention and looking after, unfortunately


How long have you had RA? What's your RA story? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/how-long-have-you-had-ra-2092 2022-02-02 14:24:16

avatar Somya.P

Somya.P

Community manager
12/05/2026 at 17:00

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avatar Somya.P

Somya.P

Community manager

Last activity on 13/05/2026 at 18:26

Joined in 2023


1,095 comments posted | 21 in the Living with rheumatoid arthritis group

105 of their responses were helpful to members


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Hello everyone,

each rheumatoid arthritis journey is different, and sharing your story can help others feel less alone and better understood.

How long have you been living with RA?
How did your story begin, and what symptoms first led to your diagnosis?
And how has your journey been since then?

Please feel free to share your experience with the other members. 💛

Take care,

Somya from the Carenity team 🌼

@Altbawn @Rose1952 @Daisymay @Has145 @Barbs21 @darrenhelen @ChrisG @dannutj89 @chris234 @Mummy56 @Myo3557 @izzpop @hartersuk @alanbinfield @FMFRANKO @trisha1952 @Chrissie1564 @sivorn @Thumper327 @Orchidangel @aristojune @foxym19 @misschrissie @Mykxmn @Kirkie @Reemaa @JazzyC @conradmcewan @Gerri1966 @greeneyes1969 @Sarahbee @Oldbones @HilaryWB @Pippadog @Mozz54 @durstonc @Pinkie @Rebecca11 @Mollyc @Peter50 @Scanbrady @Helend @Stellathepoodle @HeatherK @Debsandbilly @lynnmeyrick @Minterkerry @NettyT @LisaliliG @Kearns @yaznag @Niayule @1957chris @Eadiecatherine @Durham @smiffy @philellaway @Lornaa @anne67 @Albeano71 @rowena @karibu @Halsall @Sableman1957 @AnnaRP @Carol_ g55 @Mitche @Elainereid @Wendyrowberry @CathyA @amanda01434 @GillySB @Dogwhisper @Hannie @Mjwdlsd @pbpaula @EOINFLANO81 @Jackie54 @Pailine5968 @Donna122 @Deanjem2 @Bossyboots @Jane52 @Suek33 @MPreston @Tiamac @David130williams @Eddieirene @Shannonmurrayx @Un4getablefox @Juliana @Clarer @Shedriving @Hollybear @Amanda23 @Amberfloss @JaneCowie @Allegra

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Somya from the Carenity team 🌼


How long have you had RA? What's your RA story? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/how-long-have-you-had-ra-2092 2026-05-12 17:00:31
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