Retinoblastoma
Forum

Current topics:

• - Oesophagus cancer - stent implant
  Five days after inserting a stent into a completely blocked oesophagus because of the size of the tumour, still suffering from strong pain across the chest and stomach and... still unable to swallow e
• - How did you find out you had cancer?
  My brother was starting his first treatment for cancer. On the day i found a large lump on my neck /shoulderblade. This is how he found out he had cancer also. What are the odds of this. So terrified
• - Staying hydrated while in treatment: What are your tips?
  Hello everyone, How are you today? Many of the treatment options for cancer - especially chemotherapy and radiotherapy - can lead to dehydration due to side effects like vomiting or diarrhoea. If s

Current topics:

• - How to prepare for chemo?
  Chemosounds daunting. A pre chemo exercise program can help I believe. Does anyone know about this? I am also interested in fasting as a preparation for chemo and would like more info on this.  
• - Long term effects of chemotherapy
  The chemo therapy I received has had major impact on my life. It has left me in periphal neuropathy, a very bad impact on my dyslexia, anxiety, damage to my lungs and the on going treatment of Exemast
• - Interferons: Interactions with the COVID-19 vaccine?
  Has anyone else had nasty after effects from taking interferon ? I was on it for the last year after chemo started causing problems - it seems interferon reacted with the Pfizer jabs and turned my imm

Current topics:

• - Living with Usher syndrome: Share your experience!
  Hello, am new here. I have usher syndrome and have been registered blind for quite a few years. Also have glaucoma which has closed down one eye and affected central vision in other eye.  I manage q

Current topics:

• - Any advice for dilating eye drops (mydriatics)?
  I am scared, have to see a eye consultant next week, who will be giving me eyedrops to enlarge my pupils....i am so scard it lasts for six hours .......cannot see much after the drops.................
• - Eye conditions and daily life: questions, experiences, advice
  Hello everyone, I thought I would open this discussion so we can get to know one another better! How does your eye condition affect your daily life? Have you had to change aspects of your life or r
• - Living with one eye
  Hello I've never posted before, but was wondering how many others have had an eye removed. I was only 10 weeks old and was then the youngest patient to have the operation i had, my mum noticed I would