Retinoblastoma
Forum

Current topics:

• - Things to ask in consultation
  Hello My mum found out she has cancer on Monday of this week and has since had a Barium Swallow and CT Scan (yesterday). The doctors have booked in a consultation for Monday afternoon. The main reaso
• - Oesophagus cancer - stent implant
  Five days after inserting a stent into a completely blocked oesophagus because of the size of the tumour, still suffering from strong pain across the chest and stomach and... still unable to swallow e
• - Have you been told that your cancer is "cured"?
  Can anyone answer this question please. How can singer Rod Stewart say he is cured after so little treatment? I was diagnosed almost 5 years ago, had my treatment and psa level is still undetectable.

Current topics:

• - Interferons: Interactions with the COVID-19 vaccine?
  Has anyone else had nasty after effects from taking interferon ? I was on it for the last year after chemo started causing problems - it seems interferon reacted with the Pfizer jabs and turned my imm
• - Chemotherapy: Experiences and advice
  Were you or are you being treated by chemotherapy for your cancer? Let us know your opinion about this type of treatment, so that other patients could learn more about how it works and what to expect
• - What treatments have you undergone for your cancer?
  Hello, How are you today? I thought I would open this discussion that we can talk about the various treatments for cancer! As you know, treatment for cancer is very broad and depends on the type of c

Current topics:

• - Any advice for dilating eye drops (mydriatics)?
  I am scared, have to see a eye consultant next week, who will be giving me eyedrops to enlarge my pupils....i am so scard it lasts for six hours .......cannot see much after the drops.................
• - Eye conditions and daily life: questions, experiences, advice
  Hello everyone, I thought I would open this discussion so we can get to know one another better! How does your eye condition affect your daily life? Have you had to change aspects of your life or r
• - Living with one eye
  Hello I've never posted before, but was wondering how many others have had an eye removed. I was only 10 weeks old and was then the youngest patient to have the operation i had, my mum noticed I would

Current topics:

• - Living with Usher syndrome: Share your experience!
  Hello, am new here. I have usher syndrome and have been registered blind for quite a few years. Also have glaucoma which has closed down one eye and affected central vision in other eye.  I manage q

Current topics:

Current topics:

• - COVID booster vaccine: What do you think?
  I am hoping that I get the chance to have the covid booster ,I cant wait as then I shall know I am fully protected what does everyone think are you all going to have this if we are offered it and is t
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today?  The pharmaceutical groups Pfizer (USA) and BioNTech (Germany) announced on Monday 9 November that their vaccine candidate is 90% "effective" in preventing Covid-
• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay positi