Patients Rheumatoid arthritis
Topic of the discussion
Posted on 09/07/2019 12:06
Hello. There are many levels of treatments for RA: NSAIDs, Steroids, DMARDs, and Biologic agents, and within each level, many different options.
Please share what type of treatment you have used and/or use?
Please discuss its success.
Any Side Effects? Would you recommend this treatment?
Beginning of the discussion - 16/07/2019What treatments do you/have you used? Success? https://www.carenity.co.uk/forum/rheumatoid-arthritis/your-opinion-on-rheumatoid-arthritis-treatment/what-treatments-do-youhave-you-used-success-2889
Posted on 16/07/2019 09:51
@JosephineO For me it has been very difficult to find a treatment that works but is also safe. I have two other conditions, one of which is lupus, so I am already on a very large amount of medication that I have to be cautious of potentially bad interactions with :/
Posted on 16/07/2019 10:11
It's not easy, was diagnosed in 2006, I have been on 25mg of methotrexate constantly for over 10 years. 12 other medications have been tried with the latest being Olumiant Barcitnib which is good for movement but doesn't control RA well and has affected metabolism so have had steady weight gain since taking. Will hopefully get this changed soon as now get told I'm overweight.
Posted on 16/07/2019 12:10
I’m on methotrexate for sarcoidosis and Enbril for rheumatoid arthritis. Maybe I trust my medic TOO much, I’m hoping they are working
Posted on 17/07/2019 10:10
The general rule is that if your meds are working they leave them unchanged. I hope I don't worry anyone with my comments. My stupid body has a natural resistance to any drug and I always need higher doses than someone who is normal.
Posted on 04/09/2019 16:48
Hi Beagle, I'm just the same as you. My body is just not taking Rheumatoid medications,Methotrexate messed my blood count up,leflunomide put me in hospital, etc.So today I have been prescribed Fentanyl Patches, not just because of the Fibromyalgia and rheumatoid arthritis. I have such a lot of pain from different kind of medical conditions. Have you any idea how long the Fentanyl Patches take to work. I really am in bloody agony. Hope things are not too bad for you and you can have a good day. Take Care. Glojo.
Posted on 26/10/2019 10:42
Just got taken off Olumiant Barcitnib at last, I couldn't handle the weight gain anymore and though the Dr did not agree, I thought it was too high a price to pay. I am now on Tofacitnib 5mg twice a day, I don't think my flare ups are as well controlled but its early days, been on it one month and have already lost half the weight I gained and feel much better.
Posted on 28/10/2019 10:27
Hello @beagle ,
Thank you for sharing your experience. I know it's early yet, but have you experienced any side-effects from Tofacitinib (aka Xeljanz for those who might know it by that name)?
Posted on 15/11/2019 15:26
Anyone have experience with biologics for rheumatoid arthritis? Like infliximab or others? I'm considering, but would like to hear others words.