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Sjögren-Larsson syndrome Forum

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Medical fact sheet

Sjögren-Larsson syndrome

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Living with a rare disease
Living with diseases affecting muscles, joints and-or skeleton
Living with diseases of nutrition, metabolism and endocrine glands
Living with skin conditions

Living with skin conditions

My Lichen Sclerosus is gone

avatar Somya.P

Living with diseases affecting muscles, joints and-or skeleton

Life after a joint replacement: Share your experiences and advice!

avatar KPangela

avatar VICKICOFFEY

avatar velocette

I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask! 

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Living with skin conditions

How do you deal with how others see you and your skin condition?

avatar Spanks57

avatar LifeDelineator

avatar Becķy-3

Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar Somya.P

Living with a rare disease

How were you diagnosed with a rare disease?

avatar Somya.P

avatar unhappy

Living with diseases of nutrition, metabolism and endocrine glands

Addisons Disease- Primary Adrenal Insufficiency

avatar StephenP198

avatar JosephineO

avatar aglowlady

Living with diseases affecting muscles, joints and-or skeleton

Osteoarthritis and pain

avatar sandiew

avatar Sickofpain

avatar lynningham

Living with diseases affecting muscles, joints and-or skeleton

Anterior vs. Posterior Hip Replacement: What to expect

avatar Somya.P

Living with diseases affecting muscles, joints and-or skeleton

GTN spray for chronic pain: How much is too much?

avatar Somya.P

Living with diseases of nutrition, metabolism and endocrine glands

Severe B12 deficiency and malabsorption

avatar lesmal

avatar lacemaker

avatar Somya.P

Living with skin conditions

Atopic dermatitis flare-ups: How do you manage them?

avatar Skala37

Living with diseases of nutrition, metabolism and endocrine glands

How do you take care of your pancreas?

avatar lesmal

Living with skin conditions

Does stress have effects on your skin?

avatar Polina.K

Living with diseases affecting muscles, joints and-or skeleton

Life after spinal sugery

avatar Somya.P

Living with diseases affecting muscles, joints and-or skeleton

Do you have cramp fasciculation syndrome?

avatar Somya.P

Living with diseases affecting muscles, joints and-or skeleton

Pip for cramp fascination syndrome

avatar Gally63

Living with diseases affecting muscles, joints and-or skeleton

Shout what really gets you angry!!!!

avatar velocette

avatar Courtney_J

avatar marcusbm

Living with diseases affecting muscles, joints and-or skeleton

CBD oil for arthritis

avatar Sonicbear

avatar josie42

avatar aitch60

Living with skin conditions

CBD for eczema/atopic dermatitis?

avatar Heridana

avatar JimboWombo

avatar lawissa

Living with diseases affecting muscles, joints and-or skeleton

Spinal stenosis

avatar Sonicbear

avatar Polina.K

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