- Home
- Share
- Forum
- Sleep apnea Forum
- Living with sleep apnoea
- What is it like living with sleep apnoea?
Patients Sleep apnea
What is it like living with sleep apnoea?
- 497 views
- 33 times supported
- 39 comments
All comments
Go to the last comment
Shazdun
Shazdun
Last activity on 02/06/2016 at 20:11
Joined in 2016
My hubby has just been diagnosed with sleep apnoea , also has panic attacks , we we are waiting for the cap machine
See the signature
Sharon dunraven
Groovychick
Good advisor
Groovychick
Last activity on 14/04/2021 at 14:05
Joined in 2016
34 comments posted | 1 in the Sleep apnea Forum
Rewards
-
Good Advisor
-
Contributor
-
Committed
-
Explorer
-
Evaluator
-
Friend
I have Two sleep disorders, Restless Legs/ Periodtic Limb movement disorder & Insommia.
See the signature
A Pulford
![avatar exit](/static/themes-v3/default/images/default/user_quit.png?1720004028)
Unregistered member
I hate the cap machine feel clostra phobic. Can't wear it due to arthritis in neck so constantly tired
Thingybobby
Thingybobby
Last activity on 05/07/2022 at 15:21
Joined in 2017
1 comment posted | 1 in the Sleep apnea Forum
Rewards
-
Explorer
robjmckinney
AmbassadorGood advisor
robjmckinney
Ambassador
Last activity on 27/08/2024 at 11:20
Joined in 2015
574 comments posted | 6 in the Sleep apnea Forum
43 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Evaluator
My wife has her CAP machine for 5 years now, took some time to find the right mask. Just recently they ran out of the right mask at Papworth and she has had to try several new versions which are not so good and leak.
She had a faulty one that leaked into her eye leading to causing a torn cornea leading to inflammation at the rear of the eye almost loosing her sight. So she has been keen to get a good fitting one, another trip to Papworth is on the cards.
So a good warning to all who use the CAP machine as well as being very painful at the time, get a good fitting mask.
Take care also to make sure you take your machine into hospital on any stay. Although they have them on wards but oxygen can't be attached to your own. The consultant insisted my wife did not have sleep apnea so removed the machine and reduced the oxygen. She ended up in hours in ICU for two weeks and was touch and go for days whether she would live. The apologies from the consultant in the end would have been worthless if she had died. So be aware the hospital Doctors are limited to their speciality and do make mistakes.
See the signature
robjmckinney
johnny66
johnny66
Last activity on 20/03/2022 at 11:06
Joined in 2016
3 comments posted | 1 in the Sleep apnea Forum
Rewards
-
Committed
-
Explorer
Try a minibar instead.
robjmckinney
AmbassadorGood advisor
robjmckinney
Ambassador
Last activity on 27/08/2024 at 11:20
Joined in 2015
574 comments posted | 6 in the Sleep apnea Forum
43 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Evaluator
She has tried most versions and prefers the full face mask, they fill our draws at home.
See the signature
robjmckinney
![avatar exit](/static/themes-v3/default/images/default/user_quit.png?1720004028)
Unregistered member
@Groovychick just started having this problem last six months also cramp which can wake me if managed to sleep. Can cope with the cramp but it's the lack of sleep/restless legs that annoys me most. Tried lots of different ideas but find getting up and doing craft work till eyes are droopy then try back to bed!!!!!
![avatar exit](/static/themes-v3/default/images/default/user_quit.png?1720004028)
Unregistered member
Question. What is a cap machine??
I suffer from Osteoarthritis in my neck and upper back as well as AS Arthritis in my whole body. I started using the CPAP machine, CPAP stands for Continuous Positive Airway Pressure, back in 2012. Yes somewhat uncomfortable at first but I soon got used to wearing it, you just have to persevere with it if you want to sleep. STICK WITH IT my friend.
gerriplayer
gerriplayer
Last activity on 20/08/2024 at 23:38
Joined in 2017
5 comments posted | 4 in the Sleep apnea Forum
Rewards
-
Explorer
Dx'd with sleep apnea, wore Cpap for 2 weeks and got a sinus infection, stopped for 2 weeks then started CPAP again, got another infection. Have tried lowering humidity and temperatures to no avail. Have daily nasal congestion( like having a cold 24/7) CPAP company is not helping me. Any advice, if I do not wear it at least 4 hrs a day my insurance company will not pay for it any longer
Give your opinion
Members are also commenting on...
Articles to discover...
![Fighting schizophrenia symptoms: a long journey against paranoia after detainment and denial](https://cdn-member.carenity.co.uk/images/magazine/interview/interview_56_300x220.jpeg)
12/12/2018 | Testimonial
Fighting schizophrenia symptoms: a long journey against paranoia after detainment and denial
![Stop industrial foods to fight obesity, diabetes, Lyme disease and depression](https://cdn-member.carenity.co.uk/images/magazine/interview/interview_61_300x220.jpeg)
08/02/2019 | Testimonial
Stop industrial foods to fight obesity, diabetes, Lyme disease and depression
Subscribe
You wish to be notified of new comments
Your subscription has been taken into account
Unregistered member
I suffer from this have a cap machine. It's awful in winter cold air blowing up your nose won't use it then. I also have osteoarthritis in neck so it's very painful to wear anyway. Anybody got any suggestions thks