Ongoing discussions - Stargardt disease
- Newly diagnosed with Wet Macular Degeneration - Advice?
How serious is this
- Eye conditions and daily life: questions, experiences, advice
Hello everyone, I thought I would open this discussion so we can get to know one another better! How does your eye condition affect your daily life? Have you had to change aspects of your life or r
- Age-related macular degeneration (AMD): diagnosis and experiences
Hello members, How are you today? I thought I would open this discussion to talk about Age-related macular degeneration (AMD). What is your AMD story? When were you diagnosed? Did you notice any pr
- What is the most frustrating or difficult aspect of living with a rare disease?
Hello everyone, How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
- How were you diagnosed with a rare disease?
Hello everyone, How are you doing? What were the first symptoms you experienced? How were you diagnosed? @Hyakkimaru @Jo1977 @paul1798 @Alisondenise @Courtjack1 @gerdec2007 @Bazz